Cancer in lymph nodes

Hi Lady74, 

Welcome to the forum, I know it is the last place you would want to find yourself but you are very welcome and I hope your partner will either join here himself or take encouragement from any information that you may find from your visits. 

My husband was diagnosed back in May 2020, inoperable,  but the treatments they give now are really more targeted than they use to be.  I would hope that your partner would be advised not only of what the considered staging is, but also the type of tumour that he has, as this will all add to understanding how best to manage it from his end. 

We have to rely heavily on the medical professionals, they do everything they can and it is important that as best as possible you both remain positive and speak of what is going on for you, both of you, because you are in this together in many ways. 

There is a lot of information on this site regarding OC, if you need any help finding it let me know, also the helpline for Macmillan is available if you have private questions or certainties either of you would like to discuss. The number is in my signature below. 

Take Care of each other 

Lowe'

Hi Lowdeal, thanks for replying. I have read all your blog and when, ive been really upset you have made me think positively. He has andecarcinoma and the tumour was operable untill they found the third node. Now its not a possibility unless chemo works or a miricle happens. It starts next Wednesday. I just wanted to say how grateful I am that there are people like you. It really helps. 

Hi Lady 74 when I was first diagnosed I was T3N2M0 after 4,round's of FLOT I was T0N1M0  the chemo had in effect completely cleared the cancer from the primary tumour that was 5cm and only one lymph node was still affected so chemo can work miracles believe it can a positive attitude is paramount good luck 

Hi Graeme 

Thanks for replying, thats amazing news, its people like you on here that really help people like me. Are you able to eat anything normal now you have had chemo.

I had the operation in April 2021 and now eat completely normally it took time and some foods like bread I needed to be wary off but now I have no issue eating anything the wound has healed completely and nothing sticks the thought of the operation and recovery are worse than the reality yes it’s challenging with feeding tubes for a few months and scars to heal but there’s a path to recovery I hope the chemo works well and the surgery can go she’s thinking of you x 

Oh and after only 2 chemo sessions I was also eating normally as the tumour had decrease in size i felt it working as i could feel it twitching as it was shrinking or that’s how it felt FLOT works 

Thats good news. I hope it works for my partner. Hes lost about 4 stone since this all started. So hopefully this time next month, he could be eating something nice. I note you had the operation did they at one time tell you, you were inoperable? 

No I was told they were going operate from the start but if they are talking about operating on your husband if chemo works there’s still hope if his response is significant if that’s what they told you? 

Hi Graeme, at first they said chemo then operation. Now no operation. It has spread to a lymph node in the oeshagus that is much higher up than the other two. The lower two are next to the tumour. So now they have said, longer and stronger chemo. Then see what happens. There is a trace in the higher lymph node. I find it hard, like all in this terrible situation, mainly because you see people they say one thing then another person sayes something else. At first they saw us without having the PET results, said an operation. We did wonder as it lit up when he was in the machine. Even yestetday after the MDT meeting, we still had to ring to find out answers to questions. They didn't even say where the cancer had spread to. We only knew it had spread because the surgeon called Friday to say he was sorry he could not operate because cancer had spread. In the end we called the nurse and he explained where the spread was. I live in Devon. 

Yes it’s a roller coaster of contradictions because the information your team use is constantly changing depending on scan results I would ask your MDT if your husband has a exceptional response to chemo would they consider surgery I don’t know what the NHS policy on this is but at lest you would know I am in Scotland