Hi I'm new here,
My husband was diagnosed with oesophagus cancer in March this year, he'd been struggling to swallow for a while, before he finally listened to all his family to go and find out what it was, it has also spread to his liver, lymphnodes and hip bone, the weight loss is terrible to see, the day he was diagnosed was the day he took took his bed not getting up or eating hardly anything at all just exciting on medication and water really, I don't know what I expected but we don't get any voluntary help unless we call and say this is happening or something has changed, I just feel like we've been left to deal with it, is this how it should be.
Hi- unfortunately your not very clear as to what you want with voluntary help, if it is support have you spoken with the MacMillan Nurses in the cancer care at your local hospital or if it's home support then you can apply for various benefits for personal care depending on yours and your Husband's age MacMillan will help with all that if you contact them or if it's benefits you can also contact your local Citizens Advice.
Unfortunately we all take the news in different ways I have just had my after treatment endoscomy and for me hopefully this journey is coming to and end with those results, stay with - have they fitted any feeding tubes yet ?
Take care
Tony
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Onwards and Upwards
Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022
Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub
We just felt a bit at a low ebb like we had just been diagnosed and sent home but all sorted thank goodness for these good people,
I hope your end of journey has a good outlook
Hello
I’m sad to read this and sorry you are going through this. The days where you get a diagnosis you are perhaps not expecting and have to wait for the hospital are the worst. It’s massive news to process and you don’t know what to say when you’re in the private waiting room but then back at home your head fills with questions and worries and you’ve no support.
Well done for joining this forum and phoning Macmillan. They really know what to say you’re in that situation. You are being a fabulous supportive partner. I really have everything crossed for you that’s there’s some treatment to help your husband and improve his symptoms. I hope you both are feeling better today. X
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