Day 1 of dad's journey

Hi Chaz134

I was diagnosed in February after an endoscopy and initially was told surgery was a possibility. Subsequent scans showed 2 lymph nodes affected and a spread of small tumours to my liver taking away the surgery option. Everything happened so quickly and the beginning was a real rollercoaster ride of emotions.

I have now just started my second cycle of chemotherapy and immunotherapy and so far it has not been too unpleasent.

30 years of Police service taught me to talk with friends and family about emotions and how you are feeling and I have found being open about my situation has helped immensely. 

I also have a fantastic team of upper gastro caner nurses who are there to answer any questions and offer support in the form of a chat when needed. 

The hospital where I am being treated has a patient and relative support network and again they will provide counselling if needed.

These are just a few of the avenues worth exploring and hopefully as I have found sharing yours and Dad's experience with those close to you will help immensely and you will also find great support from those people.

I hope this is of some help and comfort to you and that your Dad's journey goes as well as mine has so far.

Hi Chaz134

Sorry to hear this. It is very upsetting and comes as a huge shock. My husband was diagnosed early December 2021 with inoperable oesophageal cancer for which palliative chemo was offered, although it didn't start until 21 Jan, due to staff shortages. Over 3 months later, and 5 months on from first diagnosis, he is doing very well. He is standing up to the chemo side-effects, he can eat normally (original tumour was 6cm) and he is able to live a mostly normal life, with a few limitations. He works part-time and we enjoy his time off, visiting family and going places. We don't know what the future holds but we are trying not to let fears about that dominate what we can do in the here and now. Mental attitude is key to fighting this cancer and this is where you can help your Dad. You have to go into battle mode and decide you are not going to be beaten down. Find the warrior within yourself. You don't yet know just how strong you are, but trust me, you will. Focus on your Dad and any needs he may have. What do people say when you're at a dangerous height? "Stay calm. Don't look down!"  I wish you and your Dad all the very best.