Mum newly diagnosed inoperable

Hi Poppy, I am so sorry that you and your Mum are going through this. The waiting is the worst thing. My husband was diagnosed mid November and between then and 23rd Dec, when we had the first appointment with the oncologist, he went through a number of tests. He started chemo 17th Jan. The two months between diagnoses and the start of treatment were agonising and felt like an eternity. You should have been given the number of your nursing team and can call them if you have any concerns. We also have a nutritionist who calls every so often to check how things are going... but these are not scheduled appointments, so you may find that you get calls out of the blue. I am sure the specialists are working behind the scenes to provide the best course of treatment for your Mum. We didn't realise until recently that you are assigned a multidisciplinary team (MDT) that meet on a weekly basis to discuss their patients. If you call your nursing team they should be able to let you know all about this and hopefully put your mind at rest. Wishing you all the best. Di x

Hi Di

Thank you so much your reply was so reassuring for both me and my mum. We have a number to call and its not that we have concerns as such it's like you say its just the agonising wait! Just you saying that there is things happening behind the scenes has helped a great deal thanks so much. I wish you and your husband all the best x

Hi Poppy,

So sorry to hear about your mum. We’ve also just had the news that my dad has cancer in his oesophagus and it had spread to his liver and lungs: apparently he is also inoperable also due to heart problems and can only have palliative chemo to prolong his life. He’s so poorly. I love him so much and I’m so scared for him. I can tell you feel the same for your mum. I hope you are all okay.