My mum just told me last week that 6months or so ago she was diagnosed with oesophagus cancer, it has spread all the way down but this is all she's told me, she can't eat and it about 4stone my heart is broken. She won't accept any hospice help and in one breath sais shes been told she had weeks left but in another breath sais there hoping to help her, the cancer has also fractured her spine she's in agony. I feel like I can't accept that she she doesn't have long left till she can accept the situation, she told me one is helping and she doesn't understand, is she bing left to die? Thats is how she feels. Is she in denile? She won't tell me how far it's spread...nothing. I live far from her but have told her I'll visit every Saturday but I'm scared she will die alone, she lives alone in a cold flat but will not accept help. Please help I just don't know what to do.
I am so sorry to hear your news, well done though for reaching out as you need support and someone to speak to I recommend giving macmillan a call on 0808 239 75 65 Which is free they are available to talk to from 8am to 8pm and are great. I myself cannot give advice on this, but i am sure there are people in this forum too who can help you :)
Oh ERF, I'm so sorry that you and your mum are going through this. Hopefully, now that she has plucked up the courage to tell you what is happening, you'll be able to get some more information from her when you see her. She may even agree to you speaking to a member of the medical team dealing with her case. We have a named specialist nurse for my husband; this would be a good starting point if she gives her permission for you to speak with them.
As Vinny has said, you've done well to post on here. Hugs, Tiny xxx
Hello, you replied to my own post about my mum so just wanted to message back. I've just read your story and I'm so so sorry. Every case is different of course but I know how you feel, this time last year my dad was suffering and it tears you apart I know. With regards to you feeling that she is being ignored, have you tried getting onto PALS? My dad wasn't treated very well so when the hospital started doing the same with my mum I immediately got onto them because I refused to let the same thing happen to another parent. They were responsive and a few days after I complained they were on the case booking appointments for my mum. As well as Macmillan I also gave Cancer Research a call too and they were the ones who advised me to go to PALS.
We are all here for you xx
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