Hi everyone this probably should have been done sooner, hello! better late then never hay!
It's been 3 years since I had my esophagus removed, and I'll not go in to the stuff that I've gone through, I'm sure it's the same but different for everyone.
I struggle with this, I want my esophagus back 
.
I've not had people that know what I'm going throw to help me, it's been me and doctors and they can only go on what they know not a shared experience.
Wish I could just kick back and have a day without this but it's a daily lived experience, it is a struggle but I'm alive and thankful.
I'm having a dietary problem at the moment, about once a week acid will wake me up, you know, coughing, burnt throat, disgusting taste it takes about 20 mins to settle down so I can get back to sleep, it's a mental trip as well.
My diet is crap, I have no apatite but for sweet things mainly, and no real hunger, has anyone got some tricks for diet?
Oh I'm Australian, live on the Gold Coast, 59 years old going on12 and would like to make it to 70 at least.
Hi there!
I hope you are well.
I have struggled with what I have been through too so you are not alone. Nothing has been plain sailing from the beginning for me. 8f anything was supposed to go wrong it did for me. Spent most of time in hospital with nausea etc etc and I still suffer with it 3 and half years later.
Everyone is entitled to have good days and bad days so don't beat yourself up about it.
The reflux is absolutely awful. Its not limited to spicy foods, it could be tea or even icecream. I try not to eat too late so that I can avoid this problem but it gets the better of me and I do tend to be greedy even though I know I am going to suffer in the end. I also eat spicy foods so having that spice come back up is awful but its just part in parcel of what we need to manage in the longterm.
Its life now so I just get on with it as best as I can. We are so fortunate to have come out the other side. Thats how I look at it. Its life.
This experience hasn't been easy and unfortunately we have been one of the unlucky ones to have suffered but still lucky in that we are alive to be at the other end .
Take care,
Rf2k18
