Post opp... 15 months.

Bondy there's nothing to be guilty about. You keep fighting and enjoying life as much as you can. This is as much a mental battle as it is a physical battle. You only have these feelings because you are obviously a caring and great guy. Pick up the phone and call macmillan and talk to someone who can help you I'm routing for you buddy.

Hi Bondy,

Please PLEASE don't give up. You're not a fraud! You need as many pyloric dilations as you need. you've had great treatment from the NHS, now you need regular maintenance.

I had treatment in 2018 and have regular dilations. I just phone my CNS, tell her my symptoms and she organises the dilation for me. now on first name terms with many of the surgeons. some of us need more dilations than others. The good news is when they dilate us they have a good look around and check us over. At my last dilation they took some biopsies (which of course worried me) but were negative and I seem to be ulcerating in what is left of my stomach so am on a much higher dose of PPI's. 

Bondy I too feel similar I had my op in June I'm now going onto dilation nr8 yesterday they could only do 14mm when I go back in January they are going to use BOTOX so hopefully this will assist, I find the whole thing frustrating and now that I have been having difficulty during the night I get anxious, just hoping I don't choke. Good luck and keep going!!