Hello, I’m on here because my husband has oesophageal cancer.

FormerMember
FormerMember
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He was diagnosed in May and having been told that it was inoperable, having spread to lymph nodes and liver, he declined chemo. He became unable to keep even water down and was admitted to hospital severely dehydrated. He spent a week on a drip and then had a stent fitted. He struggled to manage eating again and was admitted to the hospice. 
at the hospice they managed to get his pain under control and despite also having a chest infection he came home a week ago. He is fitted with a pump driver which is a mixed blessing.. one of his main problems now is being unable to get a good nights sleep as he is so restless and turning over is difficult with the box. Are there any suggestions how to over come this at all please?

  • Hello Polly42,

    I will be honest I haven’t got any advice, I just didn’t want your post to go unanswered.  You must be relieved that your husband’s pain is under control but if he can’t sleep properly you do need to get help. I’m probably stating the obvious but have you spoken to his consultant or the hospice about it?  The Oesophageal Patients Association might also be able to suggest something, it’s worth giving them a ring for any advice, they helped me so much soon after my husband’s diagnosis.

    I hope you get the support you need, take care of yourself too.

    J x

  • FormerMember
    FormerMember in reply to jayceeh5

    Thank you for your reply. I have not heard of the oesophageal patients association.  Tha Hospice nurse is due on Wednesday and I was going to discuss it with her.
    This afternoon he was not well at all and started to be unable to swallow again, as he was before the stent was fitted, and bringing back everything he tried to eat. His pain was also bad. He asked me to call Shropdoc, our out of hours service. A lovely medic came and has given him an injection for the pain, nausea and also for the agitation. This has settled home off and the medic says he will suggest that he maybe has something for the agitation regularly.. I did talk about this to the nurse this morning. I think he’s at the stage where he just needs to be made comfortable.

    thank you once again. X

  • Hello Pollly42

     I can only imagine how difficult this must be for both of your husband, unfortunately I too have no advice to give you as my hubby's experience of OC has been very different.

    I wanted to reach out to you, because you are going through this also, and I wanted you to know that we are here for you, I do hope that your husband finds the comfort that he needs, and that you have the support around you during this very difficult time. 

    Thinking of you 

    Lowe'

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