Hi My husband was diagnosed last December and we have now been told it is terminal. Feeling a bit isolated so thought this may help.
Thanks
Hi June 1960
Thank you for reaching out here, and Welcome, We are here for you if you would like someone to talk to x
What treatment has your husband received so far?
Lowe'
Thank you for your reply. He has had chemo and radiotherapy and was beginning to be able to eat a little better but having got food stuck and having had a further endoscopy he was told cancer has returned. He had a stent fitted last Tuesday which we had hoped would help but he has not eaten and is just deteriorating in front of me. He is very stubborn and All I can do is just be here for him but it is hard. I do have some counselling booked for next Tuesday and he has accepted a visit from the hospice team also on Tuesday which at first he was adamant that he wouldn’t. He does not want. A Formal funeral service which I fully understand but he does want to have what he is calling his “leaving do” so he can be there. He has arranged this for end of July but Unless he starts eating he isn’t going to make it. It’s so hard I don’t want to nag him to eat as that makes him angry but I feel I am just letting him waste away. Sorry for long reply.
Pam
Hi Pam,
Really sorry to hear this, it must be so hard for both you and your husband.
It's good that he has agreed to a hospice visit, they can offer lots of help in terms of pain control, and as they tend to work with your gp perhaps they can also prescribe some sort of steroids - I found that these really help in terms of giving you more of an appetite, as well as helping if he is feeling very fatigued. I can only speak from my husband's experience, but having a low-dose steroid massively helped us when he had no appetite for anything at all so do ask them about it. There is lots more that they can offer in terms of help, so whilst it can be very emotional I hope next week's visit helps a bit.
It's also good that you have some counselling booked, it is very hard both physically and emotionally being a carer and I hope it helps you. Feel free to message privately or reply on here if you want to vent, talk or whatever might help you. Sending you a huge hug
xx
Thank you for your reply and advice AndI will take this on board. He does seem a little perkier this morning and talking about have a tin of Heinz ravioli later so fingers crossed he does.
it’s nice to know I have a chat place to turn to. Thank you x
Hey Pam
No replies are long replies, it's good to talk
We are here for you.
Lowe'
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