Hi Everyone
my dad was diagnosed with Oesophagus cancer over six weeks ago. He has more tests to find out that it had spread to his spine and shoulder. Obviously we are gutted as operation is not an option and only chemo to see what it can do.
he is still eating (just) and doesn’t seem keen about stent, think he has heard horrible stories.
what he is getting at the moment, is pain, burning sensation in his oesophagus. He describes it like acid relux. Has anyone had that before and what do you suggest?
He has an appointment with he oncologist today about his Chemo. I can’t go as my little boy is having an op and he has no one else to go with. I am worried he is not going to understand everything. He seems like he doesn’t mind going on his own, he wants to get his independence but should I ask for telephone appointment after? I’m a teacher so can be quite controlling (lol).
alsio, he lives on his own (only 100m from us) does anyone else live on their own having chemo?
sorry for all the questions and thank you for your advice
Hi Jayne,
First of all I am so so sorry to hear about your dad.
Regarding reflux, try raising the head end of the bed using solid objects under the beds feet. Or use more pillows, but with this there is a tendency to slip down during sleep. With a raised bed there will always be that raised angle so the head is above the Oesophagus & that will make or at least help to keep the acid from rising up.
There is a med called Omeprazole which is used for reflux too, worth asking about.
The stent may open the blockage, but the reflux will find it easier with a wider passage to travel up. And as my mum had a stent fitted only 4 weeks ago i will tell you straight, it will hurt quite a lot for a few weeks. And you have to be careful with the type of foods you eat due to chance of getting caught & blocking the stent.
As you live close by, can you give him something to record his visit with oncology. They won't mind. Maybe a mobile phone app would suffice. Or get someone to do this as you have your little boy to look after today.
But for now try to get the Omeprazole, get your dad to have his head in a raised position, maybe even 45 degrees from horizontal. And very importantly, ask for a good prescribed pain killer such as Oramorph, soluble paracetamol, fentanyl slow release patches, or Dexamethasone which along with the soluble paracetamol is a good anti inflammation med.
Please get him something to record his meeting though, then you can hear exactly what was said too.
I hope this helps a little,
Best wishes to you & dad,
Graeme.
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