Hi All
I can’t believe I am even writing this but my dad was diagnosed with oesophageal cancer last week. We should find out mid next week what stage it is at & what the treatment plan will look like. He is waiting for a CT scan too to see if it has spread and we are just praying that it hasn’t & he will be okay.
It is so hard knowing it’s all out of our hands and just waiting for news about his future. My Dad is in his mid 60s, & had been noticing more indigestion, occasional trouble swallowing for a few months but was put down to gord or a hernia until he had an endoscopy. The lady doing the endoscopy confirmed straight away that it was malignant which is worrying us that she could tell there and then & also that they couldn’t see very far into the stomach because of the ‘blockage’.
I just can’t imagine what my dad is thinking, feeling etc & I just wish I could make everything okay. He seems to be keeping himself busy at the moment.
I am sorry you are all going / gone through this or similar also.
Hi Lowe
Ah thank you so much for message.
He has his CT scan this Friday, still no results from biopsy. They did eventually get back to him at the end of last week & said the biopsy confirmed it was cancer (which he already knew as they told him there & then at his endoscopy).
Still not sure of the stage - I think the wording they used was it was inconclusive but definitely cancer. So they were waiting the results of another check - will possibly hear this Wednesday. I wonder if they will just wait until CT scan though & just tell him everything after that.
Thanks again for thinking of us, and I hope you are doing okay & your husband too. X
Still no news yet on my dad. We are hoping to hear tomorrow, I think my mum is going to ring them if they haven’t heard by lunch time tomorrow though.
They should have had the 2nd biopsy results back last Wednesday and CT scan results yesterday so hopefully won’t be too much longer.
Kind of dreading the results though as I know it’s going to make everything even more real, but at least we will know what we are looking at and next steps etc.
My Dads appetite is reducing now - especially in the evenings, but so far he is managing to keep his weight up which is good. He had a few more episodes over Easter with food getting stuck which I think really shook him up & are just so horrible to see too.
Hope you are all keeping okay.
Hi Hope,
Sending you lots of strength.
I've kind of stumbled in here gathering information then realised there were forums.
My Dad's journey started in Feb, biopsy diagnosis CT etc. I think I'm in a similar situation to you but a little further down the road...
The day we waited for the call about CT results seemed to take an age... and they didn't ring til the day after they had planned to. I sincerely hope you hear soon (if not already) as the waiting for information is stressful and exhausting. At least when you know more you can have some questions answered either way.
Always here if you need an ear.
Sending love
Hiya
Thank you so much for your kind message. Ah yes sounds like similar situation but like you say you are slightly further down the road.
I hope your dad is doing ok and that you and the rest of the family are doing okay.
Still no news, my dads GP was also off today but they are ringing the GP again tomorrow to see if he has results so we will soon hear.
Thanks again for your message and sending love to you too. X
Hi Hope,
I just want to wish you the best news regarding the CT scan.
Everyone on here are doing the same, we all care so much for each other.
So if you ever need to vent, or just have any questions, I will always be happy to help. Everyone will.
Don't be afraid to ask, it's like a giant family on this superb forum, we ask, we answer, & we all have lots of different ideas & answers.
Be positive for your dad, but also be strong yourself.
My absolute best on a good CT result for your dear dad.
Regards,
Graeme.
Hi Ali & Graeme
Thanks for messages, I hope you are both keeping well.
We are still waiting for the results which is really quite frustrating now. Tomorrow will be 4 weeks since he was diagnosed and we are still non the wiser on staging & spread. It seems the lead at the hospital has been on annual leave - but you would expect someone else to pick it up surely?!
Apparently it is being discussed today & they should ring my dad this afternoon or tomorrow. I have just spoken with my mum & know news yet - so imagine it is more likely to be tomorrow now.
Its really hard for us all, but just feel so sorry for my dad that he has been just left waiting & wondering for 4 weeks now. Also knowing that this form can be quite aggressive each day I think is it a day too late now.
Sorry for long ranting message - I am not normally like this! Thanks for listening
Never apologise for ranting x
the general rule I’ve found is two week wait for biopsy then the team meet to discuss the options then call you in for a face to face. 4 weeks sounds a long time but my dads wife waited that long for her full diagnosis recently too.
As you say, if someone was on leave you’d have expected someone else to pick it up in their absence but perhaps they just don’t have the resource at that hospital to do that?
I hope you managed to do some research I really did find that it helped me when we went for the meeting for the full diagnosis as I felt much more informed myself and make a note of any questions that you’re unsure off because it will probably all be a blur on the day.
Hope to hear from you sion
Ali
xxx
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