Hi everyone,
I had my esophagectomy in September 2024. Up until recently, I've only had occasional night-time reflux (chest tickle around 2-3am), managed on and off with Gaviscon.
Lately though, I've been waking up with a burning feeling at the back of my throat. From what I've read, this sounds like bile reflux – common after this surgery – which Gaviscon doesn't help much as it mainly targets acid with its alginate raft.
I tried asking for Sucralfate (liquid/suspension form) to coat the throat, but my team said it's not standard for esophageal cancer patients, and my GP couldn't prescribe the drink version due to NHS costs (tablets only, which don't help the throat).
I'm already sleeping on an incline pillow and stop eating/drinking after 6pm.
Has anyone else experienced this throat burning post-esophagectomy? Did anything help? Or any luck getting Sucralfate suspension on NHS?
Like so many of us, I'm always worried about recurrence, so this is really getting to me.
Thanks in advance for any advice!
Have you tried taking all your PPI dose at night? My husband takes 40mg Pantoprazole at night which has helped this. Or possibly ask about increasing just the nighttime dose if you still need the morning dose. My husband takes gaviscon advance before sleeping too.
Geraldine
I find that a couple of teaspoons of Greek yogurt help me with night time reflux !
Thanks Geraldine. I split my dose prior to my surgery when my reflux was at it's worse. Now I seem to have the reflux under control, its this new bile type of burn thats the issue. From what I've read it's different to acid reflux and largely unaffected by Gaviscon and PPI's. I'm doing a trial on the Sucralfate tablets by crushing them up. Not ideal but maybe something is better than nothing.
I've put a call into my GI team again, hopefully they can suggest something as my January follow-up has been cancelled and moved to March which is too long to wait to sort it out.
Acid reflux and bile reflux are not the same thing. Acid reflux involves stomach acid flowing back into the esophagus. Bile reflux is when digestive fluid flows backward from the small intestine into the stomach then up into the esophagus.
Hi again yes you’re right but they run along the same path if you cough up yellow it’s bile that could mean you’re spinckter has been damaged due to surgery and you will have to have a scope also you may end up having a few ulcers as I did recently 8 which were ulcerated, the drug creon breaks down fatty foods which also helps and have smaller amounts of food it takes a while to get used such a large surgery in more ways
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