Hospices in London

I’m so sorry to here this my thoughts are with you both and your family this is a terrible disease

Hi Florence,

I'm so sorry to read this. My heart goes out to you and your family.

Amanda x

Thanks Mark. Great to hear the positive stories on here too of what science and medicine can do .. but would be great to see more testing for this disease to help with early detection, especially in those statistically susceptible.   x

Thanks Amanda, still trying to stay positive and there is always that little sliver of hope that keeps us going when all the obs are behaving as they should. x Florence  

Hello Florence, 

I am so sorry to read this, and know that there are no words, but please reach out to the Macmillan support line if the information below is of no use to you, as they will have a huge amount of information on this to share. 

St John's Hospice | London (stjohnshospice.org.uk) Westminster, Brent, Camden, Islington, Hammersmith & Fulham, and Kensington & Chelsea. 

Our Hospice – Meadow House – London North West Healthcare Charity (lnwhcharity.org.uk) Patients who iive in Ealing or Hounslow

My Brother-in-law and Father-in-law were both in St Josephs hospice, but that is East London. 

From that experience I can say that the care and support they both received made the few months before their end of life both tolerable and involved. At home they would have had to spend a huge amount of time confined to bed, but at the hospice, with the assistance of the hoist, the wheelchairs and other specialist equipment, they were able to participate even when they were unable to move too much themselves.. Their condition is not the same as your husband, so his experience and needs will be different, but overall I believe that all hospices are experts within their field. 

My Mother-in-law was able to spend all day at the hospice, and leave knowing they were in good hands. 

I will be thinking of you both on your journey, sending strength to you. 

Lowe'

HI Lowe,

Oh this is very useful, thank you very much. We live close to the hospice in St Charles Hospital W10 so if anyone knows about that one too it would be useful to know. I had a friend with cancer who used to stay for periods in the Marie Curie Hospice in Hampstead, which she really loved and made her feel great - but sadly it is closed at the moment. 

The medical team in hospital will discuss options with us next week - we will have to choose one, they said. I don't think at home care is an option from their medical point of view.

Surreally the hospital ward today is also in lockdown - so weirdly 2020. I managed to get an exemption to visit but it is strict on no visitors, no new admissions etc. 

Love to you and all,

Florence 

I am pleased that was helpful Florence, and also pleased that you managed to get an exemption, with so much for you going on at the moment, you don't need anything to complicate things further. 

Thinking of you both 

Lowe'

Sadly my husband passed away on 21 Feb in UCH so he did not make it to the Hospice.

Thanks to everyone on the group for supporting me and one another along this journey as it is a wonderful resource. My husband looked beautiful and keep alert and in good positive form to the end and had a lovely team around him keeping him comfortable but this group is so vital so that patients and their loved ones can hear from others. There is a lot to take in with this disease and words that no-one will ever have heard before.

Love and thanks to all

So sorry for your loss ..
Take care 

J x

Dear Florence, 

My heart goes out to you, but grateful to read that your husband was beautiful and positive until and at the end, and that the team keeping him comfortable were lovely. All of this is something that will give you some small comfort in the coming months. 

I can see that you have already reviewed some of the other forums on this site, and joined, I do hope you continue to get the support that you need and if you ever need a place to rant, feel free to drop me a line. 

Thinking of you at this time. 

Lowe'