Reduction dosage in post op chemo

Thanks for sharing your experience Anon613. I'm glad things are going well for you (nerve damage aside!)  Do you have any feeling in your finger and thumb? I know dad worries about this. In fact, just today dad went for his routine bloods ahead of cycle 3 tomorrow. The nurse was chatting in depth to him and spoke to dads oncologist.

Basically dad has 3 options: to go ahead with his chemo tomorrow as planned (50% reduction) or stop chemo altogether or see his oncologist in clinic to have a face to face chat. Dad has opted to see his oncologist and talk things through. So basically we'll see how that goes. I have a strong feeling that dad is going to call a halt to the chemo. I feel certain he's had enough and who can blame him. It's a very individual decision. Just hope the post op chemo he's had has done enough to keep the dreaded C away!

Hi 

Hope all goes well today with your Dad’s chat with his oncologist ..We had a similar chat with my husband’s  oncologist when the adjuvant chemo was stopped after two cycles ..We were told if the first two stages of treatment worked well in treating the OC and there was no sign of any spread , just those two adjuvant chemo cycles would go a long way in reducing the risk of a recurrence..I’m sure whatever decision your Dad makes will be the best one for him .

I’ve been following your journey from the beginning as it’s been a similar one to my husband’s .Your Dad has  done so well .

Here’s to him getting back on the golf course in March

regards J  x

Hi CMJ78,

Yes I do have reduced feeling in my finger and thumb, but some feeling. The biggest problem I have is the tingling keeping me awake at night. To combat this I use Lidocaine patches that I cut into strips and put over my thumb and index finger at night. This allows me to sleep. 

I'm sure your dad will make the right decision for him. The pain involved with my post surgical FLOT chemo cycles nearly broke me. But I'm living proof that the treatment can work. I'm awaiting my 5 year surveillance CT scan.

Thank you JPM, similarly I've followed your husbands and your journey too. I hope things are currently going well for you both. 

Little update - dad had a chat earlier with oncologist, a lovely man, who absolutely  assures dad that it's his decision to make and he supports his choice.  Must admit I expected dad to  say stop the chemo, but he has a couple of weeks where he can think it through and weigh everything up regarding the nerve damage etc. He did say the nerve problems may have already  gone past the point of becoming permanent, but if dad decides to continue it would remain at 50% dosage, can't be lowered anymore without becoming ineffective.

Think dad has an inner determination to see this through as he wants to throw everything at it ( which I totally get) but I worry more for his long term recovery. At least dad will have a couple more weeks for a rest  and to make his choice. He may even do cycle 3 and not 4. The oncologist did say this is the icing on the cake chemo and that dad has done about 90-95% of the treatment needed. Will see how the next couple of weeks go anyway x

That is brilliant news Anon613, to be coming up 5 years. I truly hope dad reaches that point in time... Glad you found something to help with your nerve damage so you can get some sleep. My dad complains about his feet the most, must be awful.

Think dad really wants to see the treatment through if he can, he has a couple of weeks to make his choice whether to continue but we will see. I expected him to call a halt to treatment today but he seems to have an inner determination to do as much as he feels he can. His strength has amazed me from day 1 and I couldn't be more proud of him but obviously worry about his taste and nerve damage worsening the most .