My name is Ray ( or Geoferret ) and I have been going through treatment for oesophageal cancer at the junction with my stomach since diagnosis in March 23.
I consider my self pretty positive and single minded when I need to be.
I have had four rounds of FLOT chemo, multiple x-rays and scans, surgery and am currently waiting on a date for more chemo. I have tackled everything on a day by day basis and managed pretty well so far.
Great news post surgery that there are no signs of cancer cells in the margins of my removed Tumor.
My problem right now is with eating. I have had 75% of my stomach removed and am feeling full all of the time even without eating. Initially I ate pretty well but later as my scar tissue has shrunk I have been getting the old dumping syndrome. It makes you feel very unwell and I think I have gotten some form of mental issue where coming for smells and looking at food presented makes me feel really tearful at the prospect of eating. Very unlike me but I'm getting very emotional and depressed with it all. Seven months of one thing after another will do that to you.
I am so lucky to have received the diagnosis and treatment that I have that I don't have the right to feel upset and depressed. I'm so disappointed in myself in feeling this way.
I'm sure that a lot, if not all of what I'm feeling is pretty normal but even knowing that doesn't help right now and the thought of going through more chemo that affected my taste and made me not want to eat first time round is even more daunting.
End of moaning...lol. Just thought I'd share how I've been feeling in case it helps me to get it out or for someone else to know they're not alone.
Best regards to all of you where ever you are in the process.
Geo.
I am now just 1 year post op and until recently shut down my emotions and just ‘got on with it’ when I went back to work it really hit me and I am now on tablets to help me sleep and cope with depression. I have been told I have PTSD and will need help I’m just waiting to find out if the NHS can offer this.
Everyone keeps telling me how strong I am and they are amazed how well I have coped but I can’t see it I have just done what I needed to do to get through it and I just want to be back to normal now but I can’t, too much has changed both physically and mentally.
It’s hard but at least I am still here and I have a chance for a lot more life.
Hi Geo,
I understand what your going through! I was diagnosed with esophageal cancer in November 22, xrays, scans etc, had 5 rounds of radiotherapy due to the tumour oozing blood which was making me anemic! Then I had 4 x FLOT, then the op in May to remove 3/4 of my stomach and most of the esophagus, with the remaining stomach being turned into a tube and attached to the remaining part of the esophagus, it's amazing what they can do now isn't it! Then the recovery, had similar issues with eating, u got very anxious before eating and felt full most of the time but it does get better. In August had my last lot of FLOT x 4 at a reduced rate but struggled with eating this time, loss of taste. I'm eating alot better now and getting to understand my body. Food wise I can eat anything I fancy, amounts is smaller and can't eat or drink after 8pm otherwise I get reflux when I go to bed! Bear with it m8, it will get better, even now I get tearful sometimes but we've beaten it!
Keep strong.
All the best
Mark
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007