New To Group

Hi Moon3 

being a support person is a feat in itself, the very fact that you are here says what a wonderful daughter you are. 

does your dad sleep elevated? How far away is his ultrasound endoscope? 

Thank you. We are trying, just doesn’t seem like enough.

Yes always slept elevated.

We’re not sure as he has an infection at the moment. 

Need it to get a plan in place

I am so sorry for the complications you’re facing. 
It’s brutal and confronting and I feel for you fully. 
I am willing strength into the universe for you to support your dad. 
My husband faced several bouts of aspiration pneumonia prior to diagnosis and before developing a plan. 
We have been diagnosed for 6 weeks & undergone an Ivor Lewis op 3 weeks ago. We are yet to see our surgeon & oncologist since being discharged 1 week ago. 

For us there was strength from a plan but with it a new sense of terror from the unknowns of treatment. 

The most uncanny circumstance occurred for us. Our daughter visited a medical clinic for herself during the intense period of treatment her dad was undergoing, her treating nurse’s dad was 6 years out the other side of oesophageal tumour treatment. He was grumpy and prone to depression and feeling sorry for his circumstances, she on the other hand was grateful for his life and treatment. It was the most bizarre twist of fate for her to speak to her that night, when it was most needed. 

There is strength in sharing. You have come to the right place as this site has been so reassuring for me, I hope you find some solace in shared experience at least.