Hi everyone
I'm 37 and was diagnosed with stage 4 oesophageal cancer which had spread to bones in October and was classed as paliative as i couldnt have an operation. I've had 8 rounds of flot and was eating again fine, ct and pet scan 6 weeks ago shown the oesophageal cancer was pretty much non visable and classed as full metobolic reaction, obviously we were very happy.
Unfortunately last week I couldn't breath and a chest xray shown I had pleural effusion, I had 1.5 litres drained but this came back a week later and tests confirmed it was active cancer cells in the fluid. Needless to say my oncologist was suprised given my recent ct scans.
I had another 2 litres drained and given talc to hopefully fuse it together. My oncologist said its treatable.
I was released from hospital on yesterday but and panicking about my breathing, it being back, whats normal etc after having a pleural drained, recovery and if it takes time to feel well-ish again.
I wondered if anyone had any experience with pleural effusion and could offer any advice.
Many thanks
Aaron
Hi AaronP
Thank you so much for reaching out here, I can understand why you would be panicking, but I am unable to help with your question unfortunately so I wanted to respond to bump your post back up.
Please remember if you have any concerns you can call to the Macmillan team on the number in my signature, they may be able to help.
I wish you all the very best with your treatment, Will you be having more FLOT?
Lowe'
