Hi!
I’m feeling rubbish today. I had EUS last Wednesday and nurses have said the results won’t be back in time for this week’s MDT and will be likely next week. It feels frustrating to have a whole week where no one acts on my case but nothing that can be done about it and probably won’t make much difference. Its looking more and more likely that I’ll be having the chemo or chemoradiation treatment when it’s the school holidays. Me and my partner are transferring our holiday booking - we were going to Devon for 2 weeks in August and the full balance is due this weekend. We’re not going to have any treatment dates this week so we figure it’s better to move the dates and hope we can go next year. It just feels sad to lose something that the whole family have looked forward to and I feel guilty especially for my children. Has anyone else with young children had any experience of having oesophageal cancer treatment during the summer. Do you think we might still be able to enjoy some of the summer holiday like maybe travelling to the coast for a beach days or possibly book weekends away? I work in a school and usually spend the holidays with my children and we do all kinds of days out and are active riding scooters, bikes, skating. It’ll be different this year.
Thanks
Thank you both. I will have to develop the skill of being spontaneous. Always feels like travelling anywhere with 3 kids is like a well planned and prepared military exercise. I’ll have to have the trailer loaded for any kind of day out or mini break and just see what happens. I’m active now still running, swimming, cycling, skating and doing yoga so hope that will help and I’ll have the energy to go places.
I’ve decided to tidy the garden up and put some flowers in the baskets and lots to make that seem a nicer place to stay. I’ve got a park across the road too. If the kids get fed up I’ll see if any brave family or friends want to take them out for the day. 
