Positive update never give up

  • 59 replies
  • 63 subscribers
  • 4577 views

4 months ago I was diagnosed with stage 4 osophagus cancer. I was deemed as stage 4 and incurable because I had tumours in my osophagus, but also one near my kidney in my lymthnodes which meant they could not operate. My oncologist was pretty brutal I was told I was incurable and that the treatment decisions were a difference of months to my life expectancy.

After recieving the news I went into a dark hole for a few times. I was blessed to have a legend called pat reach out to me on here who was stage 4 with a worst prognosis than me who was lucky and reacted brilliantly to treatment and was now cancer free. This and speaking to another friend who was stage 4 for 5 years who has fought every step of the way with positivity and humour really helped me develop a positive attitude and to fight this with everything I have.

When I started treatment I could barely eat soup or drink water. After starting chemo I reacted really well and stopped being sick. In fact I haven't been sick in 4 months. It has been a slow progress but I slowly build up what I could eat taking baby steps.

After 4 months of treatment and a much more positive oncolgist in my hometown I had new pet scans. The results from the scans have been remarkable the lower down tumor they can no longer see and the primary tumors are barely visible. The plan now is one more round of chemotherapy, as endoscopy for the surgeon to view my osophagus and then 3 months of herceptin whilst under surveillance. If all goes well they will operate which is the path to cure. 

I am under no illusion I have a difficult battle still ahead if me, but it's heaven to be given hope. So many of you are joining the forum and have recently given bad news. Please don't give up and be positive whilst believing in the treatment. The statistics are outdated and don't reflect the new treatments that we recieve now. I appreciate I am younger and stronger to deal with the treatment, but I was also in a position at one point where I lost 3 stone and could barely swallow water, but came back from a really bad place.

Everything I have learnt regarding eating and chemo symptoms can be found in my profile. Please don't hesitate to add me as a friend and contact me if you want to talk or want any advice as I'd love to try and help. I am so buzzing right now and bouncing off the walls. Love you all keep postive

  • I was certainly given the “all clear” for now and they were very pleased at the results. I think it’s just the shock of the diagnosis that’s hard to shake off and I’m an anxious person anyway. They said with me that they wouldn’t recommend the post op chemo given the good results. I was so ill with it the first time round that they said it would do more harm than good -and with perhaps little benefit. Apparently less than half are able to complete post op chemo. Maybe chemo was easier for you? I must try to be more positive!! Blush

  • You should be positive I'm delighted for you moggie. There is no value in stressing about what you can't control. You have been given a new chance in life and will now have a new perspective of what really matters in life. As you recover enjoy every day of it.

  • Hi Vinny, you’re absolutely right! I remember that feeling of joy after the op at simply being alive… I just suffer from mental health issues and that nasty little voice says what if,,? But you said it, I’m extremely lucky and really appreciate the chance I have. I have so much admiration for those who aren’t so fortunate yet are incredibly brave. Wishing you continued luck as you hopefully head towards that op yourself! 

  • Thank you and well said about those who sadly don't make it, 3 months now of herceptin without chemotherapy so I will be feeling myself again which I'm overjoyed about. I will be back on the footy pitch in about a month which is a dream for me after thinking my last game would be my last. 

    To get to where you are today is a testament to your mental strength and courage you are a lot stronger than you think. Focus that joy on getting through to thinking more positive going forward and doing everything you want to in life.

  • Taught my first Taekwondo class this week after a year off with treatment and the op! Great news you’ll be back on that footie pitch! 

  • Excellent news, all the very best for you and for you all x

  • I would push for the post op chemo if you can. Rich didn’t have that, mostly cos of Covid and other risks and sadly some specs that would have been removed were able to grow and now it is back. 
    Glad the op went well, that’s great news Raised hands

  • FormerMember
    FormerMember in reply to MoggieT

    Moggie T, the next time you are in the shower check your bum for the expiry date tattooed on it. Oh wait, we don't have one LOL. You can choose to keep worrying about all the what ifs and consider you are living with a suspended death sentence. After going through treatment and surgery I think you deserve to treat yourself better than that. I had surgery only in October 2016, I was T3 N2 M0 staging and 5 out of 10 lymph nodes were positive for cancer. I was told that I have a survival rate of 20-25% that I could last up to 5 years. I chose not to look at it as a suspended death sentence and to be grateful to have the opportunity to keep living. I have counted every day as a blessing, no one knows when their time is up. Enjoy life and enjoy living. Be kind to yourself every day. Kind regards Frank.

  • Frank you are an absolute legend mate all your posts make me smile and that is the exact attitude you need in life. Love and appreciate everyday stress adds no value to your life. 

  • Well said indeed Frank!