On my way to addenbrookes, acci unit for my final 4th round of their finest champagne, bit nervous as the side effects hav gotten a little harder each time. But everyone out there , time is relative, onwards and upwards, and I hope your journey is a good one. Haybag
Hi Haybag.
I had same tumour grading, had 2 rounds of 24/7 intravenous 5 days chemo per round then waited. Told they would operate if tumour shrunk. It didn't. However MDT decided as it hadn't grown, they would operate and have a go as it was, a large tumour. That was way back in Dec 2013, About 9 years ago now.
Keep on keeping on dude.
Thanks for the reply’s brent,lowedal,eckingfife,zappaman. Hope everyone is doing well, not feeling too bad this morning, can feel the neuropathy this morning without leaving the house. Pump take out at 4pm, along with picc line, which is a blessing. 16th dec cat scan, see where we go from there. To each and everyone try and have a good day,onwards and upwards, and thank you once again for your interest and reply’s it mean’s a lot. All the best Haybag.
Been to see them Wednesday after I went for bloods and oncology meeting. Had a cup f tea and a chat with graham, nice fellow. Told me various group meetings. Lovely little setting. Said drop in anytime when I’m over the hospital. Did give me details of a mens only meeting 21/12/21, in late morning which sounds good for me, will try my best to get over to that one. 6/7 chaps with different cancers meeting for a bit of a natter and light relief. Thanks for the advice and information Brent, it’s always good to hear from other people and there knowledge. All the best Haybag.
Awright Zappaman. I have been busy at work, Welfare Support Worker for Fife Council. Lots o families on low income really struggling due to food and fuel increases. Wife had a bad fall, complex break to her wrist, awaiting surgery, will be off work for months....... Was looking forward to Absolute Bowie Tribute Band at the Liquidroi. Next Fri, but it looks like a no go. Now..... Hope you and yours, are well, and ignoring this plandemic nonses. Time for a mega change me thinks. I find, if the only thing being heard is the same repeated, fear-porn, filtered narrative, I get the chills.
Hi Eddie, sorry to hear about your wife, I hope she recovers ok. As you say, and I'm not trying to be controversial, there's always 2 sides to a story and it would seem that there is a planned narrative to make sure you don't get to hear it. Anyway, unfortunately I was diagnosed earlier this year with secondary cancer in 4 lymph nodes. They weren't growing and not causing me any major problems, until September. I had a chest infection for about 6 weeks but the coughing wouldn't go away and I had lost weight because I couldn't eat for coughing. I had another CT scan on the 8th November and a tumour at the top of my chest between the oesophagus and windpipe is pressing on the windpipe causing the coughing fits. Chemotherapy isn't an option just now because of the weight loss and general weakness. I was given codeine linctus for the coughing and steroids to help me to eat more. I've an appointment with the oncologist on the 22nd December so I'll see what she says then. I got a call from a Marie Curie nurse over a week ago and I don't know whether to be happy or worried lol. It was to offer me support and she is meant to be going to visit me at home to discuss palliative care. I can't complain really, I was only given a 20-25% chance of survival up to 5 years. That was in October 2016 and I have enjoyed life since then. I didn't see the point of worrying about a return, I've enjoyed a lot of pottering around and collecting logs for my stove. I managed to travel to York last February to see a performance by a group called HEILUNG. You can see them on YouTube, a song called Krigsgaldr isn't a bad place to start. They are like nothing I have ever seen before, amazing live performance. Anyway I hope you are doing well. Kind regards Frank
Sorry to here this Zappaman. I do hope you get nothing but the best of treatment.
I always fear a return of the beast. I recently just came of Fentanyl, after cutting down my dose over a year. I now experience more pain at join area and back, scar, assuming this is common if you don't take any pain relief.
Just started back recording with me old band mates from the late 70s. The other Guitarist built a digital recording studio in his bedroom, fitted with headphone points and seating for all 4 of us to play and record. Even has Ed runs and deflection of guitars, keys etc. Hopefully get some tracks together soon. Really enjoying Peter Jackson Beatles series on Disney+, he has 60 hours of unreleased footage from the original 2 hour document. Facinating how they craft and create songs.
Tell me how u get on after your Dec appointment. Will they offer access to trials?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007