Diagnosis day

  • 5 replies
  • 52 subscribers
  • 1133 views

Been to see consultant today and been told inoperable having a stent fitted on Tuesday, to help with his swallowing, has also been found in his bones and lungs, to say I’m gutted is an understatement.  Neil has been told he can have Chemo so we now wait to see the oncologist. Was also told by my boss that she doesn’t want me to work for her as said my head not in the right place!! Sorry just been told this news, she had already reduced my hours so doesn’t have to pay me SSP I needed work to keep me sane! Feel like she has taken advantage of the situation. I need to vent in here as got no one to talk to. 

  • Hey Chillie, really sorry to hear your news. I recommend contacting macmillan and speaking to them about the financial support you are entitled too. Your boss sounds like a b#tch so you are right to vent. The news is gutting and it really does hit you hard, but now try to focus on taking things day by day and enjoying life as much as you can. I am stage 4 also and was told its inoperable, but those things can change not for everyone, but for some. It sounds crazy, but starting chemo has actually improved my quality of life for now. Beforehand I was gagging and there were a lot of tears struggling to even eat soup. So things may improve on that front I'm not sure if it was the anti sickness drugs, steroids which make you feel better or not being as stressed as I come to accept my situation. But now I eat without discomfort.

    Keep your head up chillie, challenging times ahead but keep fighting. Living with cancer is still living Slight smile and hopefully the treatment and stent improve your husbands quality of life too.

  • Thanks Vinnie not the news we wanted I knew his tumour was large but hadn’t expected it to be already in other places. We are gutted . Take care and thanks for your reply 

  • Hi Chillie. 

    Really feel for the diagnosis uz both received, a hard yin. 

    I maybe already repeating what u may already know. If yer man is entitled to pip, at any rate, then you can claim carers allowance and kick you boss into reality by dropping your hours to making less than £130 a week. Give yourself some me time. Unlike up in Scotland, they can't pursue you for debt payment if you are unable to pay.

    After surgery and chemo,  it took me 18 mths to get bk to even part time work andbmy insurances run out after 12 mths and I was behind with the mortgage, n loans etc, so much that my wife at the time decided to bail out and left me with our 14 year old son at the time, with her loud "what about smee" calls, so she finally went away with an old suger daddy from her past. Such is life.

    I had 2 rounds of 24/7 chemo with the promise if the tumour shrank I would have the IL surgery. It didn't shrink so faced palliative care until MDT decided as it had not grown to give surgery a go  that was in Dec 2013.

    I am now in full time work, remarried, had plenty bucket list adventures including a trip down the Nile playing Indiana Jones exploring all the temples etc

    Still have me house, pay what I like to the debt collecting sharks and enjoying life.

    I hear you and know your hard journay is just begun. 

    • Curl under His wings and He shall direct you in all your ways. I am not religious, but I found strength and comfort during the depth of tlmy fight, by looking for any words on healing I found in da good book!!!!. It basically helped me get some peace and sleep, which is crucial for recovery. Keep on keeping on xx. 
  • Thank you I’m sorry you went through it too but glad you are on the other side of it now, your story has given me hope, I will ring Mac million on Monday and see what they can advise us take care 

  • Hey, I hope that you are ok after the news you were delivered.  My oncologist was pretty brutal and not very personable at all, my session with him knocked me back, but don't give in as things can change there are many people in here with success stories or stories where things have got better for people with life being prolonged with a better standard of life. I for one have managed to eat and live a lot better since starting Chemo which really surprised me. As you know from our conversations I am also stage 4. Take a look at my profile where i have shared everything I have learnt so far from eating through to chemo side effects I am about a month ahead of your husband in regards to his treatment. Living with cancer is living enjoy every day as much as you can :)