Flot start

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Well my hubby had his first round of flot on Tuesday another 3 to go but at least it's started no side effects as yet but he is doing well

  • Hi Tishy

    Can I ask where your Partner's tumor is, mine is high up so am at present going through all the boring pre treatment bits with 5 weeks RT and 5 Chemo sessions, they say mine is approx 7 cm the scans say not attached but tomorrow should find out results of Saturday's Cat Scan. The oncologist is very re-assuring that it will work and says the operation would be the last last of treatments as the after life would be very difficult, they are fitting a PEG before the treatment starts in case there are ny swallowing problems as from the start of all my travels swallowing has not caused mea problem so I haven't lost weight

    Bit dissapointed after getting away with 12 months free after a Laryngectomy for cancer but they say this one is nothing connected to that one and the scan showed no other signs anywhere

    So start 15th December- what a wonderful Christmas !!

    Tony

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    Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022

    Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub

  • Hi Kasvin

    can I ask are you having the oesphajectomy?

    my husbands cancer is higher up he has had 2 cycles of chemo and is now in the middle of RT and weekly chemo. They have said that alongside the chemo and Rt having the op also is his best chance of getting rid of the cancer. Yep 
    regards

    T123

  • HI

    no I am not having an operation they are as confident as they can be that 25 low dose RT and 5 chemo should hopefully sort the problem, they called us today to cancel the meeting with the back up team as I will not need a PEG fitted which has lifted my spirits no end as this also confirms that there are no worrying signs in my throat.

    The Oncologist said that as the tumour is at such a high part to remove it and connect the stomach to it would give me a poor standard of life so he said it would be if all other forms of support had failed

    So meet the Radiotherapists on Thursday to work out the plan and times etc.

    TonySlight smile

    Community Champion Badge

    We will move mountains to help people with cancer live life as fully as they can.
    We'll do whatever it takes. For information, support or just someone to talk to,

    call 0808 808 00 00 or visit www.macmillan.org.uk

    Onwards and UpwardsWink 

    Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022

    Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub

  • Hi Tony, my husband’s tumour is down the bottom of the oesophagus, near the join to the stomach. He started his treatment last week and, like you, he’s having 5 chemotherapy sessions (one down, 4 to go) and 25 sessions of radiotherapy. Again, like you, it is not attached to anything else and he has not had much change in swallowing since he first noticed it back in July. So far the only real side effect he’s had is tiredness. He finishes his treatment on 21 December and then we’ll have to wait until March for a CT scan and endoscopy to see how much it has shrunk. Wonderful Christmas indeed! Tishy xxx

  • Hi Tishy, Yeah Christmas is going to be a delight suppose the lucky part is Christmas Day & Boxing day are both on a day off !. Could be that they are operating because his is near the stomach and that doesn't cause as many problems afterwards like mine would

    Keep in touch

    All the best

    Tony

    Community Champion Badge

    We will move mountains to help people with cancer live life as fully as they can.
    We'll do whatever it takes. For information, support or just someone to talk to,

    call 0808 808 00 00 or visit www.macmillan.org.uk

    Onwards and UpwardsWink 

    Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022

    Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub

  • Well hopefully we will all have a break for Xmas

  • Hi yes that could be the case. They’re going to have a good go at getting rid of the little so and so (inject favourite swear word for tumour) before deciding on the operation as he’s already had onHuggingmajor surgery. We’re obviously hoping this is going to be the case and fingers crossed for you too. Yes, Will do Huggingxxx

  • Fingers crossed we can all have a good Xmas and something to look forward to next year long road ahead

  • Hi Stalis

    Pleased to read that there are no real side effect from the first round of treatment, sometimes, the fear of the unknown is what makes things so much more difficult to deal with, so now the first is over, the apprehension will not be so bad next visit. 

    Good luck to you hubby for round 2 

    Lowe'

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  • Thanks for that he started yesterday round 2