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FormerMember
FormerMember
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Hi. I'm Sue. I'm a 52 year old single mum to 4 gorgeous girls, one is just off to uni.

I had trouble swallowing all through lockdown. Numerous calls to docs it was diagnosed as lockdown stress, constantly. I was finally diagnosed at the beginning of August after having spent 6 days in hospital through being rushed in due to internal bleeding. Endoscopy, biopsy,cut scan, pet scan and diagnosed esophageal cancer with secondary stomach. 

I'm still feeling like it's a blur. The only thing that is making it feel too real is the daily increasing pain and tiredness. I can't eat, it hurts massively to swallow but I start 4 rounds of chemo on Tuesday and as well as preparing for surgery, it should shrink to let me swallow easier.

I suppose I'm lucky that both are in what the consultant calls the same grab area for surgery. I am trying my hardest to stay positive Blush

does anyone else similar get pain around your neck, upper throat when the growth is at the bottom of the esophagus?

  • Hi Sue, 

    So sorry to hear about your diagnosis, but there is hope.

    I was diagnosed with esophageal cancer in 2018 aged 58. I had 2 rounds of 4 cycles of FLOT chemo and surgery. I'm now in remission. 

    My neck and throat were very sensitive, so much so that I couldn't tolerate sheets touching my neck and had to wear open buttoned shirts. I'm still in the same position today, but cancer free.

    For me the treatment was tough, but well worth it! 

    Do try and stay positive. I think that is what got me through the treatment.

    Regards,

    David

    Anon613
  • FormerMember
    FormerMember in reply to Anon613

    Hi David,

    Thanks for replying. That has put my mind at ease. It's the waiting between diagnosis and start of treatment that is a worry.

    Just sat having my first flot as we speak. 4 rounds, then surgery, then 4 more is the plan.

    Kind regards

    Sue

  • Dear Sue, 

    Positivity is key, I hope you don't have too much in the way of side effects from the FLOT, and it is great news that surgery is possible. 

    If you continue to have trouble swallowing try fizzy drinks, this was the best piece of advice given to my husband who was diagnosed in May, unfortunately surgery is not an option for him.  We have blog on here, called facing the future together which may give you some ideas... 

    Fingers crossed all the way for you as you go through your treatment 

    Good Luck

    Lowe

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • FormerMember
    FormerMember

    Hi sue welcome to the group sorry to hear about your diagnosis and it is very scary but hang on because it will get better x