Eating

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Hello, I've got my first meeting with the upper GI consultant next Wednesday. 

Can I ask what  people ate in the early days of diagnosis, please? I'm have small meals, mashed down with a fork, and still am poorly afterwards. I have porridge in the morning, which is fine, soup for lunch, which is ok but tea...

  • Hi Hisjem, i first went to the doctors because i had an uncomfortable feeling when eating. I was eventually sent for an examination by camera to the oesophagus which showed my cancer. 

    Before treatment my eating ability got worse and i,  like you,  took to eating sloppy food or chopping food up small and chewing it a lot more.

    I went through 8 cycles of flot chemo followed by ivory Lewis surgery then 8 more chemo cycles. 

    Fooling my recovery and the news it was all out and had not spread was great news indeed. But the eating for me has been a major life change. I never feel hungry or have an appetite for food. My whole life seems to be about eating several times a day which takes is toll mentally. I have lost a tremendous admit of weight but i was a big lad at the beginning.  I have gone from nearly 140kg to 74 kg.

    18 months after my initial diagnosis and following a ct scan, i was told they had found a secondary cancer of the same type high up in my chest and that it was inoperable but treatable. A subsequent scan has shown the secondary cancer had grown despit chemo and radiotherapy.

    I am currently waiting the results of my latest scan. I Will have some serious questions for them this time.  Living scan to scan without any sort of ongoing treatment plan is awful. 

    Anyway I've ranted enough and not really answered your question. Good luck with your journey. It's not an easy one. Keep strong and positive. I wrote a diary of my journey.  Click on my profile to read it.  Hope it might help you a little. 

  • A few ideas that work for me (veggie) - I eat about 6 times a day small amounts 

    you like beans (good protein) try ‘bold bean co’ Queen white beans really soft. - sometimes I just have a spoonful on their own (may not agree with you !) 
    paneer cheese with very chopped cooked red pepper and broccoli or peeled cooked courgettes and cooked in air fryer with water and olive oil adding herbs/spices or shwarmer mix
    Macaroni cooked very well with pesto sauce
    tinned spaghetti 
    rice
    greek yoghurt with honey
    mashed potato mashed with olive oil

    i also have other cereals like cornflakes with milk and warmed in microwave to soften

    porridge with defrosted frozen blueberries 

    I grate cheese Parmesan on a lot of things

    nairns chicolate chip cookies / Jaffa cakes / good quality ice cream / gelato

    not started treatment yet and trying to keep weight on!

  • Hi GeoFerret,

    So sorry to hear that your cancer is back. It’s the news that we all fear the most. 

    Cool Blue

  • The first few days for me were awful when i was diagnosed last Aug as all i was allowed was soup and plain yoghurt. Then after that i was allowed things such as mashed potato, eggs, pasta so not too bad, although it does get a bit boring sometimes. It is what it is i guess.