Newly diagnosed Oesophagus cancer

Former Member
Former Member
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Good Afternoon,

I'm hoping you'll be able to help with my lovely Mum's newly diagnosed cancer.


Mum has had trouble swallowing for many years, but had it stretched a few time no problem and managed fine.


However this year the swallowing became worse and a burning feeling in her stomach, after a few mouthfuls of food Mum felt full up. 


Dr's prescribed gaviscon and said it was heartburn. We have been with the same Dr years so he knew us well, and we trusted him. 


A few weeks later symptoms didn't improve so the Dr arranged for Mum to see the gastro team at the hospital. 

Mum was advised to have double cream, and fattening foods to help keep the weight up.


Weeks later no improvement so Mum went back to the Dr, he started her on antibiotics as he thought a fungus could be causing the burning pain.


A follow up appointment came at the gastro hospital. 

Mum had lost weight so she started on ensure milkshakes to add calories.

Mum wrote all her symptoms down and explained about the full feeling. 


Mum continued drinking the milkshakes, but the weight loss continued.

Mum was now bringing up all her food, and feeling very weak.


We weren't able to get a face to face appointment with the Dr but a telephone call.

He arranged for Mum to be seen by the gastro team at the end of October.


Mid September Mum was so sick and very worried. 

We brought her into A&E as she looked terrible, and we were all worried.

They sent her home with more antibiotics and said an appointment with the gastro team was on the system.


That week I spoke to the gastro team secretary and explained Mums symptoms. 

She was asked to come in the next day.

A barium swallow was booked that week.


So the swallow showed a problem, and the next day an endoscopy was carried out.

A 6cm tumor was discovered in Mum's gullet. 


How did all these symptoms not ring alarm bells for the Dr's????


We seen the consultant Friday and he said surgery is not an option? 


Has anyone else had this happen?? 


Please help.


Eileen 

  • Former Member
    Former Member in reply to Former Member

    Oh Dale - my heart aches for you. I am in my third round of trying to rid of this horrendous disease - starting chemo again and then my third surgery coming up as my metastasised into my bone but at least I have a small chance.

    I am so sorry - I understand the pain and energy but not the lack of hope. All those irritating stay positives - ha they should try it - I’ve told my friends to stop saying platitudes!!


    Thinking of you 



  • Former Member
    Former Member in reply to Former Member

    oh bless you Blossom......you must be worn out giving it another go.....its so draining....

    yes people with platitudes are a pain......they wanna be here now when I have just tried to eat a slice of toast and the pain is near on unbearable...

    so thats toast on my "cant eat list"...thats a bugga because I love toast.....


    I have found out who my friends are now.....some seem to have disappeared off the face of the earth....I can only put it down to they dont know what to say.....i tell them all......be your usual self....


    I do not know what my cancer is doing...because the oncologist doesn't want to see me anymore (no point he said).....my GP says....i have no need to know because even if it has  spread there is nothing to be done.....I cant help but feel something not quite right there.....



    You must be so brave Blossom to undergo a 3rd round of trying to beat the bastard.....i hope your bravery is rewarded in the best possible way.....keep me posted.....I am going to eat some more ice cream now....

  • Former Member
    Former Member in reply to Former Member

    Hi, 

    Runninglady,

    I haven’t been in here as much lately and I have just seen your post. 

    I am so so sorry to here about your mum, it is 13wks now since I lost my mum. 

    I know how you must be feeling right now, but like my mum it doesn’t sound like your mum suffered at the end so take great comfort in that. 

    It honestly does get easier, but I know you won’t think that right now as it has only been a few days but trust me it does,I am still upset and I still can’t believe my mum isn’t here but in the other hand I am glad she went the way she did. 

    Massive hugs i am thinking about you at this sad time. 

    Shine27 xxx

  • Former Member
    Former Member in reply to Former Member

    I just want to say a big thank you to everyone on this group for helping me.

    Since Mum passed away on the 1st June I miss her more everyday.

    People say it will get easier over time, but the love and friendship we had was so very special.

    To everyone of you going through treatment, or newly diagnosed cases I wish you Christmas Blessings and hope you know how loved you are.

    God Bless

    Eileen xxx

  • Former Member
    Former Member in reply to Former Member

    Hi Robby

    I hope you don't mind me contacting you i am fairly new to the online community and i have come across your journey albeit a little late on....i have literally been diagnosed with the same staging on my cancer and have been through the chemo and am faced with the surgery on January 18th.

    Can i ask how your surgery went and what your recovery was like ?

    I am still getting my head around all of this and now and reading your post is quite a comfort with no truer words spoken.

    Kind Regards

    Bev18

  • Hi and a very warm welcome to the online community

    You may not be aware but this thread was started in 2017 and looking at Robby's activity he hasn't posted for 10 months so you may not get a reply.

    It would probably be better to start your own post in the group by clicking on 'Start A Discussion'. However, you'll need to join first. To do that scroll to the top of the page and choose 'Join This Group'.

    Wishing you all the best for your upcoming surgery

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Former Member
    Former Member in reply to latchbrook

    Thank you Latchbrook

    I did think it would be a long shot given the date !

    Yes i am already a member and have had some great feed back its all very nerve racking though so sharing everyone's experience goes a long way to helping such a difficult time.

    Thank you getting in touch.

    xx 

  • I've double checked your profile but you're not a member of any groups yet. To take a look at that information click here.

    You don't need to be a member of a group to respond to existing posts but you do to be able to start your own post. I'm glad that you've had some useful feedback and I agree that being able to share other people's experiences helps.

    Best wishes

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Former Member
    Former Member in reply to latchbrook

    Hi Latchbrook

    Oops still finding my way around thank you.

    xx

  • No problem

    Slight smile

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"