Newly diagnosed Oesophagus cancer

Former Member
Former Member
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Good Afternoon,

I'm hoping you'll be able to help with my lovely Mum's newly diagnosed cancer.


Mum has had trouble swallowing for many years, but had it stretched a few time no problem and managed fine.


However this year the swallowing became worse and a burning feeling in her stomach, after a few mouthfuls of food Mum felt full up. 


Dr's prescribed gaviscon and said it was heartburn. We have been with the same Dr years so he knew us well, and we trusted him. 


A few weeks later symptoms didn't improve so the Dr arranged for Mum to see the gastro team at the hospital. 

Mum was advised to have double cream, and fattening foods to help keep the weight up.


Weeks later no improvement so Mum went back to the Dr, he started her on antibiotics as he thought a fungus could be causing the burning pain.


A follow up appointment came at the gastro hospital. 

Mum had lost weight so she started on ensure milkshakes to add calories.

Mum wrote all her symptoms down and explained about the full feeling. 


Mum continued drinking the milkshakes, but the weight loss continued.

Mum was now bringing up all her food, and feeling very weak.


We weren't able to get a face to face appointment with the Dr but a telephone call.

He arranged for Mum to be seen by the gastro team at the end of October.


Mid September Mum was so sick and very worried. 

We brought her into A&E as she looked terrible, and we were all worried.

They sent her home with more antibiotics and said an appointment with the gastro team was on the system.


That week I spoke to the gastro team secretary and explained Mums symptoms. 

She was asked to come in the next day.

A barium swallow was booked that week.


So the swallow showed a problem, and the next day an endoscopy was carried out.

A 6cm tumor was discovered in Mum's gullet. 


How did all these symptoms not ring alarm bells for the Dr's????


We seen the consultant Friday and he said surgery is not an option? 


Has anyone else had this happen?? 


Please help.


Eileen 

  • Former Member
    Former Member in reply to Former Member

    Shine27,

    I’m sorry to hear your Mum is also not doing too good.


    I’m just thinking everyday is so precious.

    Mum isn’t herself, I love her so much and it upsets me to see her not enjoying life.


    Not enjoying food, sitting for long as her bones are all sticking out, her beautiful calligraphy writing is getting worse everyday as she shakes because of the weakness. 


    She’s in no pain, just feels like she’s worthless after this news. 

    Every week will be special now xxxx 



  • Former Member
    Former Member in reply to Former Member

    Hi, Runninglady

    , I know how you feel it is horrible to see our mums like this ,it breaks my heart not a day goes by without me ending up in floods of tears.


    At least they are not in any pain, that is all we can be thankful for. 


    Can’t imagine life without my mum. 


    Hugs to you both shine27 xxx


  • Former Member
    Former Member in reply to Former Member

    Shine27, and all you lovely people who have helped me through the last few months.

    My lovely, caring, beautiful Mum passed away on Friday 1st June, after getting diagnosed on the 16th October 2017.

    May Mum now Rest In Peace xxx


    Mum was down to just 6 stone-at 5ft 8 she looked so frail.

    Mum had so many ensure milkshakes she didn’t enjoy them, but loved Capri Sun pouches, porridge, and yoghurts.

    Mum said she lived on love, and she got so much no wonder she never felt hungry xxx


    Mum had 5 days of radiotherapy in November.

    Had a stent fitted, but within weeks she could no longer keep even small amounts of food down.

    Mum developed a bad cough, but the Drs said it was part of the symptoms to do with the cancer.


    Mum enjoyed every second of life, and I’m so thankful my work allowed me to greatly reduce my hours to just one day a week so I could spend time caring for her.


    My Dad is truly heartbroken, and my brother also.


    Mum was my best friend, never let me down, we done everything together.


    Mum went to the Dr last week because she was just feeling so sleepy.

    The dr done blood tests, these results showed Mum needed iron.


    So on Wednesday I took Mum to the local hospital for an infusion.

    I mentioned Mums really bad cough, and they said they would do a chest x-ray.

    This x ray showed infection in Mums lungs, so antibiotics were also given intravenously.


    Mum had to go back Thursday for the 2nd dose of antibiotics, but Drs weren’t happy with mum’s blood pressure, so an ambulance was called to take her to the main hospital.


    I went and met her when she arrived, Mums swallowing had become very difficult, mum kept saying could I go home?

    Dad arrived and my brother.

    By now it was late, the consultant came to say the x ray showed the lungs were filled with fluid, chest drains could be fitted and stronger drugs- but Mum said no, just to go home.


    Drs said by now it was too late, but first thing it would be arranged.


    My brother stayed with Mum all night, we arrived the next day to get Mum.


    But no... they had her connected to oxygen that they then needed to wean her off.

    The palliative care team visited and said an syringe driver was advised to keep mum out of pain.

    So this was ordered.


    An ambulance was booked, so Dad said he would leave to get home before the ambulance arrived.


    Mum lay in the bed but talking, then she just took two breaths and stopped...

    Rest in peace my beautiful Mum.


    Xxxx


    We got hold of a priest, and phoned my Dad to come back.

    The nurse arrived to fit the syringe driver but it was too late.


    Mum never got to come home xxx 





  • Former Member
    Former Member in reply to Former Member

    I am so sorry to hear this and I can tell from your posts how much you will miss her and how much you loved her.

    Take some peace that she is no longer in pain.

    X x x x

  • Former Member
    Former Member in reply to Former Member

    God bless you all, I'm glad your mum is at peace now and no longer suffering. Kind regards Frank

  • Former Member
    Former Member in reply to Former Member

    Thank you frank x

  • Former Member
    Former Member in reply to Former Member

    Thank you

    HCLS xx

  • Former Member
    Former Member in reply to Former Member

    Dear Running lady 

    So sorry for your loss. There will be lots of pain but also happy memories xxx

  • Former Member
    Former Member in reply to Silverfox65

    Peter....if I could just butt in there....I was told "no surgery or chemo" for me right from the start....because of all my other medical conditions....

    Dale x

  • Former Member
    Former Member in reply to Former Member

    Kazzy B......I am in the exact same place as your dad (in gods waiting room).....i too had Palliative radiotherapy to try and delay things.....the support where i live is not forthcoming....so i just rely on my family......people say to me  "live for today"  "do the things you want to do"...blah blah blah....what they don't realize is your energy levels are the same as a dead amoeba.......and the pain level can be quite bad some days.....I was told right from the start that there was no surgery or chemo.....because of other health issues.....It has always been a surprise to me how few patients use this forum....tends to  be family and carers.....love to your dad....I am always about if chat is needed.....


    Dale x