My husband has a Adenocarcinoma extending into stomach T3 N1 diagnosis and completed 6 cycles of Capox chemotherapy last treatment 7th April and capecitabine tablets finished on 28th April. He will continue with Pembrolizumab immunotherapy every 6 wks. The main issue causing so much stress is severe fatigue of which he is convinced is permanent. He has a scan mid May to see if tumour has shrunk; scan in February showed no shrinkage but thankfully not spread. The Consultants prognosis in his words is to "keep a lid on it" only a small chance of removal. The original prognosis last August was curative path but FLOT & contracting sepsis through the pic line altered that after one treatment in September.
He is tube fed via JEJ which at least is maintaining his weight after losing 2.5 stone. He also has a stent fitted which helps with swallowing but says everything tastes vile so not eating anything. Excess saliva is another issue.
Sorry to ramble on but wondered if anyone can share similar experience and advise if the immunotherapy has helped? I know every patient can react differently but can't get any advise from hospital oncology triage, their attitude appears to be shut up and put up with chemo side effects.
I guess it's just a waiting game but my husband is not in a good place mentally but unfortunately not the type to accept counselling.
