GOJ joint cancer 5cm

Hi, i was diagnosed with the same February 5th. It's been a whirlwind of appointments since then, pet scan and lung and heart tests oming up this Monday and Tuesday.  It does come as a big shock, but there is hope. One of the first tings I did was order a book from amazon,by Dr Alex Michael, beyond the esophageal cancer diagnosis.I'ts easy to read, not sugar coating the situation nor scaremongering,  but it does demystify the language medics use, suggests the types of questions to ask and helps those walking the journey alongside understand what is going on. I haven't read the treatment pages yet until I know what path im on. 

I also joined an esophagus cancer survivors Facebook group, as well as this one. The encouragement I have had from them really helps stay positive, some of the stories are amazing and give hope. 

One thing I wasn't prepared for was the egg white sometimes foamy slime I've been bringing up regularly. Found out talking to my CN that it is something the tumor produces. Discovered it is common, and people carry cups or bags to get it away, it comes up quick and isn't pleasant. Been told that pineapple juice might help, just stated drinking that today, I'll let you know! 

If eating becomes difficult ask the cn  or dietician to get some samples of fortysip through to you. They are 2000 cals in a pleasant drink, best kept in the fridge,  though I do have to thin mine a little with milk. Love forest fruit, mocha tastes like an iced coffee, the banana one reminds me of the foam sweets we had as kids!

Anyways, hope this helps a little.  I will pray for good outcomes for dad, and peace for your whole family. Hang in there. Love to both x

My advice is to wait until you have a full diagnosis from your father’s multi disciplinary team before asking this question.

There will be many people on this site including myself who were first diagnosed with a 5cm tumour at the GOJ. After that there are various treatment options depending on a lot of other factors. Once you know specifics you will be able to ask questions on those options and outcomes here. And get a more meaningful response.

Waiting for the full diagnosis brings with it anxiety and the shock you refer to. Usually once a treatment plan is in place most people feel somewhat relieved.

Another thing I would add is keep off Google! 

Thank you so so much this is really helpful will look into all of this and I hope your tests and treatment all go well ️ xx

Thank you so much Rosie that is reassuring to hear, hopefully we have some news soon and I hope you are doing well xx

Hey

Going through very similar with my mum.  Was referred in Jan 2026, had every test under the sun. Luckily not spread to other organs just local lymph nodes.  Hopefully finding out this week the treatment plan either straight to gastrectomy due to size and location or chemo prior.

Advice is take 1 day at a time, don't Google anything and write down what your feeling to process it all.

Keep us updated x

H Toots. My husband was diagnosed with similar at the start of December and is currently at the hospital having his third dose of chemo. 

I agree with Rosiee that once you know where you stand and a treatment plan is in place the initial panic does abate. Early on in the saga we were advised by one of the nurses in the team that treatment is a long process and not to look too far ahead - just take it one day at a time and deal with what's happening next. I think this is sound advice, although I confess I sometimes find it hard to stick to! 

I find this forum a great source of information and support - somehow just knowing there are other people going through the same thing helps. All the best to you and your Dad. x

They have 300kcals in each drink