Happy new year to you all
it’s been a while since I posted and for that I send my apologies. Time, although so grateful to have it, has taken over some what since my last post.
on the 17th of this month I will celebrate 1 whole year since surgery. Still recovering but reminding myself everyday how lucky I am and how far I’ve come.
the road has certainly been a rocky one for sure. The Ivor Lewis op went well but then I spent 6 weeks in hospital with a severe lung infection. I’ve had two endoscopy’s and two ct scans so far scan results have shown no spread or reoccurrence so far and endoscopy has confirmed this but has shown I’ve significant barrets oesophagus, obviously not great.
Ive returned to my job teaching full time, but my goodness I can’t believe how tired I still am. Managing to keep my weight the same, despite the awful diarrhoea that comes on morning noon or night whenever it feels like it. Now developed a new ailment of a bloody cough every time I eat and not at any other time. Does anyone else have this?
My specialist nurse thinks I need to have some counselling as being perfectly honest I am living from each 3 month scan and endoscopy to the next and there is that constant thought in the back of your mind that this awful bloody thing will come back, but what is anyone going to say to make that go away? I just feel that especially for the next year at least it is constantly going to be there when the odds of survival are a frightening 30% for me over the first two years.
How have any of you on here managed to get these thoughts out of your head and has anyone else got this coughing issue and found a remedy?
thanks guys
sarah x
