Hi everyone
I thought I’d give a quick update on Paul who’s receiving treatment for a recurrence (see my profile if you want more details). So he’s having the chemo infusion every 3 weeks, tablets every day and a strong dose of immunotherapy every other time. So far the main side effects have been fatigue and nausea along with tingling fingers particularly with this cold weather. The fatigue for the first week after the infusion means he has 2 sleeps a day and this drops to one sleep a day in weeks 2 and 3. He’s struggling not to lose any more weight (he’s just over 10 stone and is 6’!) because his plumbing is different due to the Ivor Lewis op and also the tumour is growing on the inside of his new oesophagus so it’s narrow. His taste buds are also now getting affected by the chemo so food doesn’t taste so good.
He’s mostly keeping in good spirits and we’re just hoping this treatment buys us as much time as possible. He’s just had a scan so we’ll see what that shows (if anything).
I was just wondering if anyone had any tips on keeping hands warm so Paul can walk the dog which he really enjoys? He’s got various gloves but none give him more than about 10 minutes before he can feel his fingers starting to hurt.
Sending everyone strength and positivity
Jane x
Hi Jane
I am about to start chemo and immunotherapy for reoccurrence. I was going suggest the same, heated gloves or you can get those little warmies you can put inside the gloves. Walking the dog is my f
ite to do and helps boost my energy levels. For the scan results, it is stressful waiting isn’t it.
Best wishes Jennie 
Hi
I got neuropathy with FOLFOX and Immunotherapy. Now I’m on Paclitaxel - feeling is reduced but my finger tips still tingle rather than feel cold. Diagnosed with S4 Oesophageal Cancer in Feb 24. Feeling totally fine apart from completely bald. 
