hi people, so had a call from my upper GI nurse from stoke mandeville last night NED in normal area they scan, pelvis, oesophagus, etc, this is the first time i asked to be scanned further afield, as i have had pain in my left shoulder since march 2024, non masectomy side. ct scan has showed up reactive lymph nodes in my left armpit.
nurse said the person reading the scan wasnt concerned, it could be down to a cold, flu, vaccination, none of which i have had, apart from covid and flu jabs mid year 2025. no fever, just some skin issues which i have cream for, from the immunotherapy, got the pleasure of seeing my oncologist today, 
and it seems i need to fight pleasantly of course to make sure the ct scans are 3 monthly as agreed by the original oncologist that no longer works there. have had a sore throat for a while, also hardly any saliva, mouth is so dry every morning. looking online, on proper cancer web sites, i am thinking of pushing for a pet scan, ultra sound of the reactive lymph nodes and make sure the ct scans are back on track. despite the stress, upset, and drama it causes for me at home.
any one had the conversation ref reactive lymph nodes, just dont trust this guy, he missed all the symptons i was presenting for oesophagus cancer, whilst under him for my after masectomy treatment. can i ask to go back to the care under the churchill?, i have an appointment with a surgeon next week, from the churchill who did the oesophagectomy, and ironically its a year to the day today, that at this time of day i was already under and having the op. And as i am struggling, already due to the usual reaction from the hubs, thinking i will go in there today by myself. i am so worried i will just burst into tears or just shut down, without having a say. At least the nurse i deal with said he will be in there with me.
thank you for reading, its been a hell of a week, at least my eye check up showed nothing going on behind my eyes, and they got the vein 2nd attempt after i showed them which vein works, for the immunotherapy, so small ticks.
jules xx
I’m so sorry you have more worry Jules. Whilst I don’t have specific knowledge I know you are absolutely entitled to a second opinion …… from another hospital if you wish. I looked at doing this from The Marsden in case needed for my husband and the initial cost for a private review was about £500 I think. I know Igraine and others have had second opinions and changed teams so I hope they are around soon to see your post.
Sending love and every good wish.
Geraldine 
xx
thanks for reading and replying peeps, so all calmed down here now all the appointments are out the way, notes from the scan shows i should be having 3 monthly scans so thats now back on track, we all agreed a ct pet scan should be done (hopefully christ) for peace of mind, aches in shoulders and arms, oncologist seems to think its down to immunotherapy, but again after pet scan results, will have an mri and more tablets, steroid based. can just feel my whole mood lift, dietician and counsellor next week, so at least we have a few examples of how quickly it went boobs up when the appointment, scan, results etc got too much.
thank you for hand holding you lovelies, so appreciated xx
