Next steps after recurrence

JaneD 4 hours ago

1 reply
58 subscribers
79 views

Hi everyone

So we met with the oncologist today who confirmed there is a small tumour at the new join of the oesophagus which is causing some narrowing. The CT scan doesn’t show any spread anywhere else at this time but there is cancer in the lymph nodes next to the join. We discussed the prognosis without treatment which is 6-12 months and with treatment 1-2 years! Paul is not giving up yet and is prepared to try the chemotherapy and wait to see if immunotherapy is possible as well. He’s been given a choice of CAPOX (higher risk of neuropathy) or cisplatin (more nausea and risk of hearing loss) as the 2 drugs to go with Capecitabine.
What a lovely choice! He has got some permanent numbness in his toes and a tiny bit in his fingers already from FLOT so he’s a bit worried about the neuropathy risk.
Just wondered if anyone else has got any experience of these drugs? It’ll be 3 weekly.
Jane x

jayceeh5 2 hours ago

Hello

I’m sorry about the new fight you face but your spirit is amazing. Many years ago my husband had OC (diagnosed as inoperable) and he had ECX chemo every 3 weeks which included both capecitabine and cisplatin. He had 6 cycles that made him feel lethargic a few days after each one but otherwise he coped well. The oncologist was so pleased he arranged for 2 more cycles and, miraculously, the tumour virtually disappeared and - relevant to you - the engorged lymph nodes returned to normal. He had an oesophagectomy in 2009.

I don’t know if this helps at all but there is always hope, we had none at the start and it was heartbreaking, I know we are very fortunate.

Best wishes to you both x

More from this forum

Next steps after recurrence