Husbands diagnosis oesophageal cancer and rib metastasis

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Hello, 

New here unfortunately, Husband started off with difficulty swallowing, gp appt made and put on 2 ww, 2 weeks later gastroscopy revealed a hiatus hernia and inflammation, 3 biopsies taken from a growth in lower O but Dr reassured us it was likely benign and reflux related.. fast forward about 4 weeks he got a call for a CT scan and a 15 min appt at our local hospital outpatients. 

We were completely blindsided when the Dr informed us it was in fact cancer and had likely spread to the liver and bones, so she ordered a liver mri scan, another phone call a few days later she said it hadn't actually spread into liver and that there was a lesion on his bone but they were unclear, so Pet scan a week ago  and appointment today with consultant at the endoscopy unit at a larger hospital.  

It has in fact spread to his rib, there's a thickening there. Again absolutely blindsided, we were hoping for a shred of positivity but again none. 

Treatment offered is chemotherapy and we are awaiting an appointment with oncologist. 

He is 46 years old, fit healthy, doesn't smoke or drink. We are never going to wake up from this nightmare are we? This is it now. No staging information either. No idea what stage the adenocarcinoma is at or the rib. 

Well done if you made it to the end. My world has ended - we have 2 boys 12 & 16, 16 yr old in middle of gcses so holding off saying anything but they are surely going to pick up on something being off. 

Thank you again for reading my ramble, I literally don't know what to do with myself.  Heart️

  • To me it feels like a rollercoaster you just want to get off of and you can't. The waiting is awful and also the fear of what's going to happen. I'm so incredibly sorry that you and your husband and your family find yourself dealing with this utterly cruel disease. But please ask away in this forum any questions you have, there is often someone who can help or offer advice. And do have hope if you can, I've read of instances where the cancer has spread and was initially inoperable and through chemo this has been reversed and the surgery offered. 

    Big hugs x

  • Thank you so much and hug reciprocated Blush

    Its just an absolute mine field isn't it. 

    That's what I'm looking for, the hope that it could retreat enough for op or anything! Anything to keep him here longer. The tears won't ever stop it don't think. 

    Thank you again for replying xx

  • I am sorry that you are on this journey, we to are on it and have an appointment tomorrow to discuss treatment options. The only consolation I can suggest offer is that without full information- bloods, scans etc the medics can't offer a sound and evidence based treatment plan and this takes time.

    Good luck with your journey.

  • Hello Lou

    I know it's very overwhelming when diagnosed in the first instance and our natural reaction is to think all is lost. But honestly this doesn't have to be the case. My advice would be to trust in your MDT, they will be collecting all the information they need to organise a treatment plan for your husband. I was diagnosed T3N1M0 in April last year after an endoscopy, a CT scan and a final PET scan. Fast forward to now and I've had 8 rounds of FLOT chemotherapy, four pre and four post surgery. It's been a real rollercoaster from then until now but I'm here to tell the tale and to give you all my best wishes to you and your family. Please ask us if there is ANYTHING you want to discuss, there's always someone on this forum who will be able to help you with valuable advice and information. You are not alone...... 

    Anthony x

  • Thank you so much everyone, it's a lonely place in your own head isn't it.

    We are under an absolutely amazing hospital so definitely hoping for a treatment/ management plan that can offer us a glimmer of hope. 

    Can chemo alone reduce the bone metastasis aswell as the oesophageal tumour? 

    Lou xx

  • Chemotherapy can reduce any cancer that's present, it's not easy to endure and obviously it does take it's toll on healthy tissue too but the side effects are usually tolerable and reversible. I lost my hair, my taste and lost sensation in my hands and feet (nephropathy) too but it all came back eventually 

  • I just can't see any positives at the moment, every appt has been doom and gloom. 

  • Hi 

    The initial diagnosis comes without a doubt as a great shock for everyone .It feels surreal to be hearing all those words you never thought you would hear in your lifetime .

    We learned not to think too far ahead .We taught ourselves to just go with the flow and trust the specialists .It’s all we could do at that time really .You just go through each appointment , each stage of treatment and pray for the best outcome .It’s definitely a rollercoaster of a journey .

    I can’t sugar coat it and say the next steps forward are going to be easy ones but you will find the inner strength from somewhere to support your husband through whatever he is facing in the near future .You must look after yourself too and of course your children .Lean on family and friends for support .We found the support from our family and friends invaluable.

    Never give up ! 

    sending hugs 

    J x

  • Definitely the worst rollercoaster I've ever been on!.

    I will have his back the entire time and family and friends have been absolutely amazing.

    I can't thank you all enough for your kind words and advice. X