So scared

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My partner was diagnosed in February of this year, unfortunately it was found to have spread to the lymph nodes in neck resulting in a stage 4 diagnosis and palliative care route. He attempted to start chemo last week but unfortunately the side effects were too much to bear so he’s currently in hospital being stabilised before starting again, the plan was for 6 months chemo and see how successful it’s been. 

mainly looking for reassurance as the word palliative brings up negative connotations, he’s only 46 and we have a 15 month old boy, life feels very cruel at the moment

  • Keep believing get well I got the same illness 

    Ok then good
  • My step dad has ended up in hospital after every chemo session. He went in after the first 1 and they kept him in till he had his second one so hopefully they will stabiliser your husband and then do his 2nd one while in hospital maybe. My step dads been given 3 types of anti sickness and this last one hopefully seems to be working I think sometimes they have to find what suits each person. I’m no expert though just figuring things out as we go along it’s very exhausting. Sending all the luck in the world to you, your husband and little boy stay positive 

  • My husband was diagnosed palliative in December. His cancer had spread to distant lymph nodes in the stomach. He was using Capox and pembro (immunotherapy) In April after significant reduction  he's now having an operation next week . He's now on the curative pathway . Please don't give up hope 

    Tiff

    x

  • Hope all goes well for him ! Sending hugs Tricia xx

  • It's a horrible illness as you say.  My Dad is battling through it at the moment.  They can do amazing things, so stay strong and know that you are not alone.  I will be wishing for the best for you and for your little boy.

  • That’s absolutely amazing news and I’m so happy for you! Thank you for sharing and I hope all goes well xx 

  • Big hugs  , My husband is just going through further tests to establish the extent of his oesophageal cancer so I can empathise with your fear.  The phrase ‘palliative care’ has understandably increased your fear immeasurably as it is often associated with someone who is going to die soon. However, palliative care is a broad term to indicate an holistic approach to supporting a patient and their family emotionally when a complete cure may not be possible and it also encompasses pain management.  According to the Marie Curie website, palliative care is NOT the same as end of life care. They say,

    “…palliative care is much broader and can last for longer. Having palliative care doesn't necessarily mean that you're likely to die soon – some people have palliative care for years.” 

    As your post was over a week ago, I hope you, your husband and your little boy have all been offered some support from the palliative care team now and you are feeling a bit less scared. Very best wishes to you all. 

  • Unfortunately even more bad news, he now has cancerous lesions on his c3 vertebrae, he has had a dose of radiotherapy for pain relief more than anything. At least he is finally home from hospital after having his feeding tube rig installed through the stomach