Hello,Hubbys cancer seemed to respond well to chemo,now we are told it has spread to liver so no radiotherapy to back up chemo.Also change of hospital ,Doctor is saying immunotherapy isn't suitable either so its just chemo,shocked and numb .
I’m so sorry you have had this news. I don’t have the knowledge or experience to comment but send heartfelt hopes for some positive treatment. Geraldine x
I am sorry to hear this ! I know when I was waiting to start chemo and it was delayed I was worried it would spread, and a change of hospital and doctors can’t be easy. Sending you love and hugs and hope there is a way forward though this Tricia x
Similar experience to my husband. 1st 2 CT scans after treatment started showed positive results. The 3rd, results shared on 10th Feb, showed increase in tumour again and further spread, including one in the liver. Huge decline since then, trouble swallowing anything, nausea, bloating, pain and crushing fatigue. This week should be the start of 2nd line chemo but this won't go ahead if he doesn't pick up before then.
Things seemed to be going positively ,then like you were told its in his liver,He seems Quite well at moment ,eating normally which is a releif in itself.Was it after his Chemo started that he got alot worse,hope you don't mind me asking.Hubby is having a line put in soon and discussion with chemo team.I was coping quite well but now think its caught up with me.How are you coping ?.Do hope your Hubby picks up soon .Hugs .
So, he started his 1st treatment regimen in September and this was FOLFOX chemo, Nivolumab immunotherapy and he eas on the FORTITUDE trial. The 1st 2 follow CT scans showed reduction in the tumours but the 3rd that the primary OC tumour was growing again and they could now see spread in the stomach and further spread in the liver. Rod had a PICC line fitted in his right arm at first but eventually the oncologist relented and he had it replaced with a Port in his chest. This meant he didn't have to use a waterproof sleeve in the shower, there were no tubes hanging out and he could go swimming, although he didn't manage to get to the swimming pool and has been too tired really. He managed 8 rounds of chemo and had one cycle when he just had the trial.
For me, the past week has been the worst emotionally. I was close to tears all day then full on floods once I got home from work. I think I was tipped over the edge by a work situation and the end of my daughter's 3 year relationship with her lovely boyfriend, plus seeing Rod struggling to eat then the regurgitation starting again. He wants us all to carry on as much as normal so I am still working, walking the dog, eating meals. Our girls are continuing life as usual too. This all helps us to cope, as does talking to family and each other. I've got some incredible support from most of my team at work too.
Hi Lorraine,i have the support of our sons and some friends fortunately.David had 2 rounds of chemo and then a scan showed itmon his liver ,so change of hospital and treatment regime ,his previous treatment was supposed to be curative,not so the one he will start on.we are not sure if he will be given immunotherapy either as it may interfere with quality of life as weeks pass.his doctor has said but we will see.I too have been tearful not knowing, and then that What If syndrome kicks in.David is having a line fitted beginning of march .We are both retired so don't have work to cope with ,thank goodness.Still seems surreal as this time last year life was okay we were plodding along.Have rung mcmillan too they were very kind .Shirley
It's good to read that you are making the most of the support that's available, Shirley. It is surreal how life can turn so abruptly. I hope David's next treatment is bearable and effective in gaining some more quality time together. One of the oncologists told us that there are minimal side effects with immunotherapy but I don't know if he meant just the one Rod was on. Others on the forum have received a different message and I read one post where the oncologist seemed dead against it.
Hello,we see the chemo nurse on Monday for yet more info...aboout his treatments to come ,.I t seems to depend on the strength of immunotherapy given as to side effects,am more than a bit concerned about his next scan,that what if syndrome has kicked in again.We had hoped to get away for a couple of days but David's thought better of it.Went shopping yesterday with a friend ,nice time just mooching.Stay strong a good cry never did any harm.Shirley.
