Having a bad day

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Hi everyone,

Just wanted to come on here for support really. I am having a really bad day. I see him today and a very bad vomiting episode and it’s breaking my heart. If the PET scan comes back with M1 which they predict is there any way back? Are there any success stories or is it just a waiting game. I don’t know how I can get through this. Sorry everyone I am just finding things really tough at the moment and can’t stop crying 

  • Never give up hope Heart

    I've sent you a friend request, my husband is also M1 x

  • Thank you. Heart️. What treatment plan has your husband been given? We are still waiting on a PET scan and then hopefully will know the correct staging but it looks like T3 L2 M1. x

  • T3 N3 M1 

    Ive messaged you x

  • Hi

    sorry to hear your having a bad day, I don’t know what to say you are such a good friend he is lucky to have you and your support will really help stay strong x

    tricia x

  • I’m so very sorry you have to go through this. Sending virtual hugs and support Pray

  • Hi lovely,

    My dad was diagnosed T4, N2, M1 December 23. Inoperable and incurable. 

    He has had 6 cycles of chemotherapy and 10 sessions of radiotherapy so far and been offered a 2nd line treatment in the new year to stop the cancer growth. 

    December 24 he is feeling the best he has felt for the past 12 months, due to him finally being on the correct pain relief to manage the pain. 

    1 year on he is still fighting and we are all optimistic he can continue to fight through 2025. 

    It is heartbreaking to watch as we have been though the vomiting stage as my dad has lost nearly 7 stone since the beginning of diagnosis to now. 

    If you want to ask me any questions please do and I will help as much as I can. 

    Take care

    Kayleigh x

  • Hi Kayleigh, thank you for taking the time to reply I really do appreciate it. I am sorry to hear about your dad but I am glad he has the pain under control. Where does he have the metastasis if you don’t mind me asking? We are still waiting for the PET scan for confirmation it feels such a long wait from a month ago when he first got told. I hope you have a lovely Christmas xx

  • The beginning is always the hardest and I think everyone will agree with that. We had the diagnosis on the 29th December and treatment didn't start until March. The waiting game drove us all mad and my dad continued to work until chemotherapy started. He then made the decision to retire at the age of 57. The last couple of weeks since his pain is under control he keeps saying I might go back to work part time! He has never been one to sit, he loves to mess. Me and mom know that this isn't realistic though. 

    Of course I don't, you can ask me anything, as we have most likely been through something similar ourselves. 

    My dad's had spread to the liver, this has now disappeared. Unfortunately due to the bulkiness of his oesophagus tumour we haven't seen much reduction in size of this throughout treatment. My dad's has wrapped itself around his aorta and grown outwards towards his back which is pressing on his nerves, this is the cause of his pain. 

    We are going to have a quiet Christmas as a family and eat, drink, laugh and make memories. 

    Merry Christmas to you both. Sending you love and hugs x

  • Hi Kayleigh, 

    You have just reassured me so much thank you for being so kind. I just want to stop crying. I know everyone is different and we will wait to see what the scans confirm. He is still working although now shut down for Christmas so that’s good he can now rest. Like your  dad he wants to keep doing! He is 58, has awful pain under his ribs especially after eating and round his back and the vomiting episodes have now started. They say his tumour is 4cm I have no idea in regards to size and what that means. That’s amazing that it’s disappeared from your dads liver!

    I hope you have a lovely Christmas together. Hugs x  


  • Crying is normal, so please don't think you have to stop. You have so many emotions going through you right now. 

    My dad's tumour is 6cm and still around that size. 

    Treatment can do wonderful things and we are just praying it will stay stable for as long as possible.

    Kayleigh x