In October My husband was diagnosed with Stage 4 oesophageal cancer that spread into liver and is terminal. 2 rounds of brutal chemotherapy and now with immunotherapy. His weight is dropping of him and trying to get an appetite is so hard. He also has chemo tablets in between 3 chemo sessions.
Im devastated.
Thank you, I’m hoping for the new norm to kick in soon. You’re right, it’s definitely a more positive way of looking at it. At least we get notice and make the most of the time we have. I think we all hold out for a miracle. I would be happy with a year or so more. The uncertainty is the worst part I feel.
Good Morning all, the visit to the undertakers, went well yesterday, all of his wishes are in place, we can now concentrate on the day to day stuff.
Yesterday also, I spent nearly 2 hours sorting out medication that the palliative care nurse had "forgotten" to order on Tuesday. Went to the pharmacy to collect what should have been there after speaking to the cancer team, who assured me the scripts were there to collect. No prescription!! Checked with surgery yes on the screen for Dec 26th, had to speak to a duty doctor to change it. I phoned cancer team again and they also phoned the surgery to rectify the mistake. Got all of that done and no meds at the pharmacy. This is not the first time I have had to run around sorting other peoples problems, to say I was upset would be an understatement. Collecting meds today, fingers crossed. Dread to think how people on there own cope if this happens to them.
All I want is some peace and quiet today with my man. Going to look through the photo albums, and have a smile or to and remember all we have done.
God Bless everyone and Merry Christmas
Hi Bikerbabe,
Nobody should ever have to go through this on their own and your husband is lucky to have you. I’m glad that the photo albums brought back many happy memories and I’m sure that they will be looked through many times in the weeks, months and years ahead. I hope you are able to make this Christmas special and have a few more photos to add to the album. Merry Christmas and best wishes to you both. CB
Hello BikerBabe.
Out of interest, why did you choose this as your username?
It's so frustrating when there are problems with prescriptions. You'd think in these digitised days that the process would be easier and more efficient. I guess NHS staff are so busy that it can be all to easy to forget things or gor GPs to not read prescriptions properly. It's happened to Rod a couple of times since diagnosis. However, at this stage in your husband's life it would be nice if there could be more care and diligence.
Your plans sound comforting and the coming days will give you time to reflect on your wonderful life together.
Sending love to you both and best wishes for a peaceful Christmas.
Lorraine xxx
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