New diagnosis

Hi, yes please if you could share the name. Thank you 

Hi Kayleigh. We are in the process of getting second opinions. Our route is pretty much the same as Willow73. I am currently sending the diagnosis letter to the Royal Marsden and Christies and also one of the professor's/surgeon in Southampton are going to take his case to the multi disciplinary team. The hospital in Edinburgh that I am dealing with say it will take up to 30 days for us to get copies of all my partners notes however other hospitals/consultants can request them directly. Hope this helps. Good luck x

Thank you so much for this. I'm going to speak with my mom to see if this is a path we could explore. I would really like a second opinion. I feel like we don't get much Information from his oncology appointments and it frustrates me. X

Thank you for this. As I said to willow73 think this is something myself and mom really need to do. 

I'm not satisfied with the information we have had really throughout our journeys and our half way mark no scan results were back for us to discuss and no real information given to show his progress or even what happens when chemo finishes. X

Hi Mochi, could you tell me what hospital this surgeon is based in and If you know his first name? We are willing to try anything at this point. Thank you.

I don't know the name of the drug but I just asked our oncologist. I'll forward the name as soon as she replies. 

Thank you and good luck to you too! 

Hi Sam24, sure! He works at Texas Oncology and his full name is Shaun P. McKenzie. His specialty is esophageal cancer and locations where it typically spreads. Like liver/pancreas resections. 

Good luck, let me know if I can help!

Hi Kayleigh,

So I talked to our oncologist today and she told us that the fallback drug is pembrolizumab or Keytruda. 

Hi,

I was diagnosed with a tumour in my oesophageas, I had cancer in my liver, lung, lymph nodes in my neck and small cancer bits in my tummy. After 4 lots of chemo most of the cancer had gone. After 8 sessions of chemo 2 separate ct scans show no sign of cancer. I still take chemo tablets though. The doctor said that my reaction to chemo was remarkable. So there is always hope. Don’t believe all that your told by the doctor I was given I year and I am well past that.