Hubby diagnosed oesophagus cancer T2 N1 M0 Oct 22, 4 rounds of FLOT completed 1st Feb 23, ivor Lewis surgery 28th March 2023. Restarted next round of FLOT, 2 more to go. The surgeon's, onogology and the lovely macmillan nurses at kingsmill hospital are brilliant. But wasn't prepared how life changing this operation would be. But fingers crossed everyday is a bonus to have my hubby. Jan 24 started to loose weight, Feb finally got appointment with surgeon, ct scan and endoscopy, 20th Feb ct scan done. 5th March call to come in maybe a leak. ( if only) no easy way to say it. THE CANCER IS BACK. apparently in lymph nodes. Tomorrow got appointment with onogology prey there is hope as at this moment, hes feeling like hisworld's ended, but he want to live.
Hi SamanthaN
Its perfectly understandable to feel this way ..I can’t say I worry about it everyday but I do ask my husband every morning how he is feeling ..which is something I didn’t do before The whole experience does make us all more sensitive about aches and pains .
My husband has a CT scan on Friday ..He mentioned a dull ache and a burning sensation in his shoulder blades ..I was straight on the phone to his specialist nurse . resulting in a phone call from his surgeon and the scan referral…One half of me is thinking ‘Ok relax , this could be something and nothing ‘ and the other half of me is thinking ‘OMG’ !! ..So even though I’ve felt more relaxed about things recently ..the fear must be there somewhere in the back of my mind .
At the end of the day we can only put our faith in the specialists and hope for the best ..Cancer truly does suck! it scars everyone it affects , even if we do feel like we’re coping well .
regards J x
O my I hope the scan is OK, but at least they listened and investigating, hubby was supposed to have his chemo interview yesterday but ended back in hospital with a chest infection that hadn't cleared up from the other week. Just feel hopeless and wish I could take his pai away. Thinking of you fingers crossed x
Hi not good, he's now got extremely low iron, waiting for gp to prescribe supplements, he's so breathless can't move about without heaving, not eating, sorry to burden. Just don't know what to do, he's been in hospital 3 time already this month, he doesn't want to go to a&e. Just feel so helpless, afraid and lonely.
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