Hello. I had my 2nd round of four proposed FLOT chemo rounds last Friday. The 1st round was a disaster, I ended up in hospital for a week, neutropenic, and a raging tooth infection. Thankfully that is all sorted now, and I was eventually given the all clear for round 2, and so far it has been drama free.
They reduced the levels by 20% and I'm having injections in my tummy daily to boost white cell count (I wasn't given these for the 1st round). However, it's been a week today since I had the chemo and the exhaustion is showing no signs of going away. I had a shower today for the first time in days, and it's floored me. I'm due pre-chemo bloods this coming week, and 3rd round next Friday.
People I've spoken to who have been through FLOT have said 4 or 5 days of exhaustion, then you feel better. I'm worried because I don't seem to be. My white blood count after the 1st round was actually zero, and I was put into isolation for a week, and my oncologist said I'd have not recovered without a hospital stay, so I'm concerned about how I'm feeling again, despite the 20% reduction.
Is this extreme exhaustion normal for a whole week?
For anyone following this thread and wondering about FLOT chemo exhaustion, I turned a corner yesterday and am feeling MUCH better now. I had 7 full days of absolute exhaustion where even going to the toilet made me feel shaky and fit to drop, never mind trying to have a shower! However, day 8, a good night's sleep (the first good night in over a week) and woke up with a strange feeling of... energy! I actually WANTED to get up and do things! First a shower, then a predicted rest, but did some domestic chores and sat outside in the fresh air for a while. Felt like a different person from the past week.
I know going forward to round 3 this Friday, that from next Sunday I will have another 7 days of feeling rubbish. Except this time I won't worry, will focus on a day at a time, and know it will pass again. A horrible, tough learning curve, but needs must. I can do this! (My mantra) :-)
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