Dad just diagnosed with inoperable tumor

Hi Wig

a warm welcome to the group. SO sorry to hear about your dad. Life's too cruel for words sometimes.

I supported my late husband through the 3 years of his GBM journey. We were given several timelines along the way by the medical professionals. If I'm honest I wish that they wouldn't give people these timelines. Please bear in mind that they are based on best guesstimates and published averages and no one is average, everyone is unique.

A GBM journey will last as long as its meant to last. Some are short journeys; others are longer. The diagnosis itself is a huge thing for all involved to process so all the emotions that you are feeling are perfectly normal. 

A few years ago now I wrote some community blogs for MacMillan. I'll share one with you just now that you might find supportive- 

Caring for a partner with a brain tumour – a Community member’s story - Macmillan Online Community

This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though I'm sending you a huge virtual hug and lots of strength.

love n hugs

Wee Me xx

Good morning thank you for the reply just trying to take every day at a time he is ok but he is loosing his speech and his memory has gone too he is also so tired all the time  mom is struggling too going to speak to McMillan later to see if mom can get any help

HI Wig

lovely to hear from you. I hope you manage to get some support in place to help your mum here. Your dad's GP might be able to support here too. 

If there a hospice local to your parents don't rule out a referral from the GP to their community team. In our case the local hospice were absolute angels and so supportive of the whole family.

Sending love and light and hugs

Wee Me xx

I'm so sorry you are going through this you must all be in shock. Try to get help through a local hospice if you can, they can support at all stages. 

Brain Tumour Support has a helpline too. It's devastating to see someone change so much and it's a lot to understand and cope with. 

The oncology nurses that work with oncologists can help you if you have one. They are very good at getting you support. Are they brain tumour specialists that have given you the time frames? Definitely get as much specialist support as you can.

Take care x

Hello, 

Unfortunately we share the exact same situation. My dad was completely fine 3 months ago and now he can't walk or talk - I'm absolutely heartbroken. 

I've had to move in with him to give him 24/7 care and quit my job to do so. 

He was given weeks to 3 months to live which was just over 3 months ago and has had a steady plato however in the past couple days he's started to get really angry which is just not like him and it's hard  

it's beyond heartbreaking to see him like this. It's so cruel and unfair. I share your pain and I'm sending you the biggest hugs!!! 

I'm so sorry you are going through this. It's so awful to see your healthy loved one go through these devastating changes. Take care