Struggling to come to terms with mum's diagnosis

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Hello,

  • I'm just a little lost and I don't know how to make the most of life when I feel like I'm grieving for who mum was. Mum was diagnosed with a grade 4 glioblastoma in December at age 63 and had surgery, radiotherapy and is still having cycles of chemo. She is stable just now and I know how lucky we are to still have precious time together but I just feel like I can't come to terms with this horrible disease and what it has taken from mum. She was full of life, so chatty and so fit before this happened. Now her mobility isn't great, she sleeps most of the day and isn't able to hold any conversation. I know she is fully aware of everything going on and her memory is amazing but it's just so heartbreaking to see her like this. I feel so guilty even saying that I'm finding it hard as I can't even begin to imagine what she is feeling. I stay so positive for her but inside I feel broken. She is my best friend and the person I would always go to for advice, I just can't anymore. Thank you for listening and sending so much love to everyone affected by this, I realise reading the forum that I am not alone. 
  • Xx
  • Hi Pixie85

    Welcome to the community and  I am sorry to hear about your Mum.  I suggest that you join the family and friends forum as well where you'll get support from other family members who's loved ones have cancer.  Here's the link to that forum: Family and friends forum. You could also join the Carer's only forum for additional support.  Here's the link to that forum as well: Carers only forum .

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Pixie,

    I'm away at the moment but wanted to reply at least briefly. 

    You're doing amazingly well to hang in there and be positive for your mum. It's so hard when such an important part of that person you love just isn't there anymore. 

    I was lucky in many ways that my wife remained positive throughout her illness though her cognition was affected a fair deal. 

    You're dealing with a lot so do make sure that you take the time to let all the emotion out sometimes in a safe space. I don't think I did that often enough.

    And lastly, you're right you're not alone and I'm pleased you found this group.

    Take care,

    Chris

  • HI Pixie85 

    A warm welcome to the online community. So sorry to hear about your mum's diagnosis. Life is too cruel.

    I supported my later husband through the 3 years of his GBM journey (he was 50 when he was diagnosed) so I can empathise with what you are going through. My daughter (24) misses being able to talk to her dad.

    It is hard to watch this journey unfold before you. I get it.  I've written a couple of community blogs for this site that might help you here. Here's the links

    Caring for a partner with a brain tumour – a Community member’s story - Macmillan Online Community

     

    “I’m fine”: how do you really cope as a carer? - Macmillan Online Community

    This is a safe and supportive space so please reach out here anytime. There's always someone around to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you. I drew a lot of support from this group and from Cancer carers forum | Macmillan Online Community.

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    for now though I'm sending you a huge virtual hug and lots of strength.

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Chris,

    Thank you so much for taking the time to reply and whilst away too. It does help being able to talk to others who understand. I'm really so sorry about your wife and what you have been through. I feel better knowing there is somewhere I can reach out for support.

  • Hi wee me,

    Thank you so much for your reply and the information. I'm so sorry to hear of the loss of your husband and what you and your daughter have been through. It's just heartbreaking and feels so unfair. I think it would be helpful for me to speak to someone so I will be sure to call the helpline. Thank you again, I appreciate it so much xx

  • Hi Daisy,

    Thank you very much for your reply and the information. I will be sure to check this out. Thank you again