Hi All
I've been reading some of the stories on here, firstly I just wanted to say how brave everyone is and wishing everyone the best for there journeys with this awful disease
My Auntie was diagnosed with a GBM just before Christmas. She had a little left sided weakness just before surgery (tumour in right parietal lobe) but since surgery she can barely use her left arm or leg, not sure how much of the tumor was successfully removed yet.
She is waiting to hear about further treatments, but given the diagnosis I've been doing some research into the drugs in the title, and thought to ask if anyone has used these in addition to the usual chemo and radio?
I know it seems experimental, but it appears there have been some studies about the effectiveness, but I'm unsure where to go in trying to get access to this treatment.
Thanking you all in advance
Hi SharonB22
I just wanted to pop on to say that unfortunately you won't get a reply as the member you've messaged is a FormerMember so no longer part of this community.
The best thing to do to get an answer to any questions you have would be to join the group and then start a new message.
I've put a link here which explains how to join the group but, if you need any further help, just drop me a reply.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
