Glioblastoma

Hi Bluebell

I am so sorry to hear of your husbands glioblastoma -especially after going through pancreatic cancer treatment. 

I understand that you will both likely be going through a range of emotions and that it feels difficult to cope at the moment. 

Please consider giving the Support Line a call and talking it through with one of the nurses. They will understand and listen. They can also have a look and see if there is any support available for you both in your local area. 

Jane

HI Bluebell

a warm welcome to the online community. I am so sorry to hear about your husband's diagnosis. Life's too cruel for words at times.

I can empathise with the overwhelming emotions that you are experiencing. I supported my late husband G through the three years of his Glioblastoma journey and remember only too well how overwhelmed and useless I felt. That was when I reached out here too so I am glad you have found us.

I've written a couple of blogs for MacMillan on this aspect of the journey that might help a wee bit here. Here's the the links -

Caring for a partner with a brain tumour – a Community member’s story - Macmillan Online Community

“I’m fine”: how do you really cope as a carer? - Macmillan Online Community

As Jane has suggested it might be worth a wee call to the helpline for some support but this is also a safe and supportive space. There's always someone around here to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

If there is anything I can support with please just ask. I'll be open and honest with you based on my personal experience with G. A GBM journey is an emotional rollercoaster ride but you will get through this. I appreciate that you perhaps can't see that just now. One mindgame I used to play with myself to get me through the tough days was to break the day down into manageable chunks and reward myself when I got there - eg "if I can get to lunchtime, I'll have a biscuit with my coffee" or "If I make it to tea time, I'll sit in the sun for 10 minutes" Little things can make a big difference. 

You need to take some "me time" here too as it helps to keep your batteries charged. It might feel selfish but even a few minutes for yourself (coffee or lunch with a friend, a trip to the gym or a walk) can make a huge difference.

For now though I'm sending you a huge virtual hug and lots of strength. You are coping so much better here than you give yourself credit for but you'll just need to trust me on that.

love n hugs

Wee Me xxx