Hello everyone its Paige
I have spoke about my dads diagnosis of GBM stage 4 in November of last year.
I havnt been on here for around a month as ive had a lot going on. It is with deep sadness that i tell you all my strong, kind and caring dad passed away on the 28th of January. My heart is broken i cant even describe the sadness I am feeling. 9 weeks after this diagnosis he got taken away. I am finding it quite hard to cope at the moment as you all can imagine and the guilt is really eating me up inside as i wish i couldve spotted something earlier. I was wondering if anyone can help me with these horrible feelings or give me any tips. I feel like a part of me has died too. I physically cannot explain it any other way.
On a more positive note my dad passed away so peacefully there was no struggling he just slipped away to sleep<3 and i was lucky enough that he said his last word to me.
im not really sure what the aim of this post is but i want everyone to know on this forum that you are not alone and we will get through this together.
we will never forget those we have lost. i would rather have my dad for 23 years than anyone elses dad for longer.
thank you to everyone who has replied and supported me throughout this terrible journey.
sending love and strength to everyone<3
Hi Paige
Sending you a big hug. This disease is horrible and it rips you apart. Please dont feel guilty. Unfortunately there is no cure/treatment for this disease. As mentioned to you in my earlier post , please private message me. I can share my daughter's number. She is your age and has been through exactly the same. Hope she can help you.
Hiya Paige
I’ve been thinking about you guys and wondering how things have been. I’m so sorry to see this update. It all happened so fast for you guys, it must feel so shocking and such a whirlwind.
I think guilt is something that we all felt at some time for various reasons, I felt incredibly guilty for wishing my dad could find peace after suffering for a year and watching him disappear slowly before my eyes. Everyone’s journey is different and I think it’s important to feel all the feelings but ultimately remember there is nothing any of us could have done to change anything. GBM is brutal, a cruel beast, and honestly it’s just sh*t.
All I can say is it won’t feel this raw and painful forever. You have been totally robbed, it is so desperately sad and I’m so sorry x
Hi Paige
so sorry for your loss. Life really is too cruel but I am glad that his passed away peacefully.
You're right, we never forget the ones we love. They live on in us, in our memories and in our hearts.
Please be gentle with yourself over the coming weeks/months. Grief is a strange thing and it takes as long as it takes so please don't be too hard on yourself.
This group is still here for you and your mum, anytime. We get it. I get it. So please reach out or PM me anytime.
sending you both love and light and hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I'm so sorry to read your news Paige. It's clear just how much you loved your dad.
From experience, it will take quite some time to get over just the shock of what you've been through.
There's a link here to some info from Macmillan on coping with grief. Grief support after someone dies | Macmillan Cancer Support
Sending hugs and wishing you and your mum all the best,
Chris
Hi,
its been crazy, i feel like i havnt even processed his diagnosis yet nevermind him being in the hospice and passing away. So sudden honestly.
grief is like something ive never experienced before u find myself analysing everything i did and questioning whether it was the right thing to say/do. But ultimately i feel like whatever i did i would've felt guilt because thats how im inclined as a person.
thank you so much for your reply its lovely xx
Hi WeeMe,
thank you for the reply. that is the only positive out of this situation is that he passed away so peacefully because he didnt deserve any more suffering.
my mum always says to me i am so similar to my dad and i remind her of him and how lucky am i for being alike to him. Youre right he does live on in me and hes my reason to get up every morning and live my life.
thank you so much for your generosity i know my mum is struggling so im going to try and get her to be more active on this group as it has helped me a lot. its good to feel like youre not on your own.
thank you
chris thank you so much.
i loved him more than words can say and more than hell ever know.
i need to realise i tried my best and stood up for him as much as a could with him being refused chemo etc. I think its just a hard pill to swallow coming to terms with this reality.
thank you for the link to the website i appreciate it so much x
Hi Paige
I'm here for you both. If it's easier for your mum to PM on here I'm happy to support her where I can. She's on the path I'm now walking so I get it at that level.
You'll get each other through this part of the journey. There will be ups and downs and laughter and tears but as long as you're both on the same page you will be fine. You're two strong women and I'm sure your dad would be proud of you.
Love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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