Hospice or home... this is coming close

I'm so sorry Sparkles. From experience it will take quite some time get over just the shock of what you've been through. 

There's a link here to a page with the support Macmillan and other charities can provide to people struggling with grief in case you need it. Coping and Adapting after loss 

Go easy for the next few days. If those emotions need to come out they might come when you don't expect it. Might be music, a kind word from someone or just a happy memory. Just don't worry about what you "should" be feeling. 

Sending hugs,

Chris

Oh Sparkles I am so sorry but take comfort that he's no longer suffering.  This journey is cruel beyond belief.

We're still here for you.

Sending love and light and hugs 

Wee Me xx

Sending you a big hug. It’s never easy though we can say “he doesn’t have to suffer anymore “ .  Catch up with friends, step out for coffee, do what you feel like. There is no right or wrong but take care of yourself. 

Thank you Wee Me, for everything these months I been on this forum.  To know caring for those sick with GBM, we are not alone. We all share and go through such similar traumatic experiences too, watching them being eaten by the C monster. Hugs

Thank you Jyo. Trips trips and more trips. Should keep me busy, though his mother I am very worried about. She's hit the realization no, post cremation (lots to do the couple weeks post death). She's in some serious depressed mood now. I don't know how to help her. But I really need to think of something!

Hi, I was wondering if I could have some advice please? It looks like they will want to discharge my father in law to home or a hospice. He is of course desperate to go home, but he lives alone and unfortunately he cannot move in with us as we have a young baby. It looks like the hospital will push for a hospice, but my wife wants to support her dad by getting as much support to go home. 

He had limited speech, and motor functions and is currently nil by mouth. From your experiences do you think he would be okay at home with 4+ visits a day from carers, or would he be best off in a hospice now?

Hi

I'm going to be blunt - no i don't think it would be best for any of you to have him at home with carers at this stage. That is my personal opinion based on our experience with my late husband.  If it was me I'd push for hospice care as there is 24/7 care there to keep him as comfortable as possible.  The hospice nurses are absolutely fantastic and will support the whole family through this journey. 

Hope you get something arranged that works for everyone. 

Love n hugs

Wee Me xx

Thankyou for the quick response! Much prefer honesty at this stage!

You're welcome.  It's such a hard journey for all involved.  My heart breaks for you all

Love n hugs

Wee Me xx

Another vote here for hospice given the circumstances if they're offering a bed. Carers coming in just isn't the same and can itself become a bit stress inducing.
You also have to bear in mind that at some point he is going to deteriorate and a hospice will just take this in their stride.