Hi everyone, hope your all trying to stay positive, I had a grade 4 glastoma removed 7 months ago which went well, then followed by chemo and radiotherapy for 6 weeks. I’m 7 months on and just comin
to the end of my second lot of chemo thank god with no signs of anything returning , but now I’m suffering with my head it’s all over the place. It’s hard to explain as I’m sure you all understand ut it’s like tightness of the head sometimes with a dull head pressure inside but it just makes me feel terrible, they say from my last scan that there’s nothing wrong in my head from the scan, no selling nothing so no one seems to know.has anyone had the same thing . Take care all ️
HI
a warm welcome to the group. Glad to hear you're ding well but sorry to hear that you're experiencing some discomfort.
I'm not an expert. I've been supporting mu husband through his GBM journey since he was first diagnosed in Sept 2020. Over the months, years now, he has very rarely commented about having a headache but he has on occasion mentioned that there's always a dull ache there. Perhaps that's similar to you are feeling. He hasn't let it stop him let's put it that way. He learned to cope with it. Even now as he approaches the final phase of this journey he rarely complains of a headache.
I've approached this journey with him with the mindset if a symptom is bothering you, talk to the CNS or the Dr about it. Perhaps its just a medication tweak that's needed. That's great that there's been no re-growth. My husband reached the two year anniversary of his diagnosis with minimal regrowth. Sadly a few weeks later things changed but he still ran the 2022 London marathon with two new areas of regrowth in 3:33:34. He's never let it stop him.
This group is safe and supportive space so I'm confident someone with personal experience will come along and add their words of wisdom shortly. Hopefully they'll put your mind at ease. Please though do reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer that virtual hug when its needed. You're not alone.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now thought I'm sending you a huge virtual hug and lots of positive energy. Stay strong.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hi Chris
will be thinking positive thoughts for you both on Friday
hang in there
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Well as from yesterday my chemo is finally over for now, the consultant said it could be how the fluid is moving round the brain but after 7 months and nothing to have this now I can’t see it, but as I said no one seems to know rite now. I’ve been told to let my body rest now after chemo and see how everything settles down. I hope it does soon as I don’t want to do anything with my head like this.
oh well nothing I can do for now just be grateful that everything’s clear in my head , it’s a good day really. Have a good day all ️
