Hi All
I must admit that I haven't been on here for sometime, lost my dad May 2018 and just found it hard to partake in any conversations since then tbh.
Quick backstory
Dad 68 / OCT 17 diagnosis gbm ocioparietal lobes, inoperable. Refused chemo and radio, as wanted his last months to be special and not knocked for six by the side effects. So was sent home with Deximethasone.
That 6 months of mine/our lives literally ripped us apart one way or another. But more importantly it pulled us all back again when the day came.
I cant offer words of wisdom or the like but if anyone has any questions thats bugging them of the unknown and the last weeks etc then please please feel free to drop me a message, Im also happy to go private if thats what you would like.
For some reason i kept a diary of his last months, I think that it kept me busy at the time. And happy to share it with anyone if they wish, one big thing that always bugged me was the lack of info for the wks leading upto end of life.
What did it look like, what should we all be looking for etc etc.
Again I wish you all well enjoy on this horrid journey
Danny
If you don't mind me asking how long ago was she diagnosed with GBM4. Your post is hard to read Gary. Please tell her a total stranger is asking about her and sending love from Newcastle. X
She has been living with a tumour which wasn't growing for the last 2 years but her doctor spotted something at the beginning of last year but her appointments kept getting cancelled due to Covid so we have no idea what stage she was at then. By the time they got her into hospital it was too late to do anything.
A week before Xmas a surgeon removed 90% of it but it's grown back really quickly. In the space of 3 months she's deteriated really quickly.
Thanks for the kind words and best wishes from a fellow northerner.
We’ve been told ice chips or ice lollies can help , all we can do is keep the lips hydrated with lip balm sorry I’m not much help
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