decision on treatment when surgery not an option

Hi

So sorry to hear about your sister.  We all have arrived here with no warning so we understand how shocked and stunned you feel.  It is very hard to get your head around what is going on.

We were lucky that surgery was an option but there are plenty of people in this forum who couldn't have so don't give up hope.

You haven't said your sister's age and general health but radiotherapy should be considered as an option 

Have your team suggested chemo as well?

Take care of yourself too

Hi thank you for your reply 

sorry for short introduction.. don’t know questions to ask

my sister is 58 .. very very fit & healthy up until 6 weeks ago .. skiing , golfing. Running & and a very busy an accountancy business! This is so quick We do not know what to do or where to turn. 
we have no experience of cancer in our family so of course always support Macmillan & other charities through the years but not our family :( 

just getting to grips with it all ! When do we contact Macmillan 

what do we do ?  xx

Hi

Given that your sister is relatively young and in general good health (ignoring the brain tumour), I think that you need to have a long and serious conversation with her oncology team

Have they not suggest any treatment plan even palliative care?

Sorry I can't help you further

Take strong

Thank you for that .. my sister was strong previously but this tumour has been described as large, deep and impossible to operate on. 
her family has had 2 relations and a close friend who dies from cancer within the last couple of years and they saw them going through horrendous Radio & chemo treatment and do not want to put Mum through this ! 
sorry to be so blunt but does anyone know anything more about glioblastoma grade 4 without having treatment:(

regards x 

Hi

So sorry that I can't offer more help. Without any treatment I think the outlook is very uncertain 

The chemo for this is different to other ones. It is oral and you take it at home.  No loss of hair or those type of side effects . Tiredness is an issue. 

Radiotherapy is useful even in a palliative care setting 

Take care and look after yourself 

Hi Irishtwin, sorry you find yourself here, I can only echo what Life Detour has said.  My son's oncology nurse was a great help and when there was a question I wanted to ask without my son hearing I would email her.  My son sailed through treatment, both radio and chemo, it isn't as aggressive as other cancer treatments and can, in many cases, be tolerated well.  We contacted Macmillan quite early, they have some really helpful leaflets and helped with claiming benefits, with a diagnosis of GBM4 you can bypass lots of questions and if the oncologist gives a DS1500 you can use a fast-track process. The brain tumour charity is a useful place for information too.