My husband has a gbm grade 4

Thank you everyone for an insite into your personal fight. 

I was diagnosed with a brain tumour in January followed by surgery to febulk in Feb. I have completed a reduced course of radiotherapy. Reduced due to Corono virus and Chemo was cancelled for the same reason.

I await a scan date now which I am advised will be 2 to 3.months

I like so many Iwill continue the fight Nil. Desperandum

Life is for living and I intend to do so long as possible.

Good luck best wishes to everyone 

 Stay safe and be strong 

Hi,

Stay strong and have a positive mind, I appreciate this is coming from the wife of someone with the diagnosis. Hopefully treatment will commence for you soon. The one thing we've learnt as a family during the past 7 months is you will hear/read many sad stories, once through that you can focus on the positive stories.

Life is definitely for living!

Stay safe and take care.

Lisa x

Hi Lisa. I am new to this forum, so here goes. I am a 64 year old man who has a GBM4. This was told to me and my wife on the 29/04/20, after I went in for a biopsy to remove the tumour. I start my treatment of radiotherapy today, and they plan to start my chemotherapy next week, this is due to me having several blood clots on my lungs, and having six weeks of blood thinning injections.           I. Have read all the posts on this website, and have picked up some good ideas, especially writing a journal.  I also noticed that many of you are females, writing about your loved ones, I will try and get my wife to join.  Love to you all. Glenn

Hi. Glen I have the same diagnosis I had surgery for tumour removal in Feb and have just completed my radiotherapy. I am due a scan in 2 months followed by a review.

As in previous posts, be positive stay strong. Stay safe 

A journal is a good idea especially documenting any changes to your health. 

Stay safe be positive 

Best regards 

Tony

Hi Glenn,

Yes you will find this forum a great help, will be a comfort to your wife too. You think you're alone but you're not. Graham's tumour wasn't operable due to being too deep, so only had biopsy, then 6 wks of radiotherapy with reduced TMZ, then one month off then was due 6 months of TMZ, but due to covid has only had 3. He's first MRI since diagnosis is end of the month. Apart from short term memory not good not really any issues. He still cycles daily and we walk everyday. I can say his fitness and having raced/trained for 30+ years has definitely had a positive impact on all this. Having a focus, no matter how small can give you the drive and belief. Statistics are just that but we all read them, but I've learnt the doctors really don't know as everyone is different. 

How are you generally now? How are you coping with the injections for blood clots?

Take care and stay safe,

Lisa x

Lisa & Tony

Well i have just had my first taste of radiotherapy, no problems so far, the injections for the blood clots appeared to work last night, as i had a good nights sleep, laying down was not easy to breath. I did sweat a lot, but it might have been due to a warm night.

In general I feel pretty good, my appetite is all over the place, but chocolate is always welcome.

I will try and walk the dogs tonight, about a mile, takes just over 1/2 hour. then it is bed by 9pm.

I still have a slight cough, and have been tested for Covid-19 four (4) times, all negative .

thank you for replying to my post.

Glenn

Hi. Gen I too. am on blood thinners injection not something to look forward to.each day. I am also on steroids which play havoc with my appitite but yes a good excuse for chocolate 

Stay safe

• Tony 

I am 

Tony

 Ha ha, do you have to inject your self ?. I am not on steroids yet, in fact they have not been mentioned. chocolate is best kept in the fridge.

Glenn 

Hi Glenn

Either myself or my wife injects into my tummy only 2 more months to go doing it. 

I. Guess a small. Price to pay in the scheme of things 

Hope you are keeping well. and making good progress 

 Yes I like to keep chocolate in. The fridge too.

No alcohol with the blood thinners so I am trying alcohol free beer. Not as good as the real thing but under the circumstances it's not too. Bad either 

Stay safe 

Regards 

Tony 

Tony

Didn't know about the beer and alcohol drinking, whilst on blood thinning injections,  I got told yesterday that once the injections are over, I will be going onto tablets for the rest of my life.

You say you have 2 months more of injections,  I have only been given 6 weeks worth.

Got to sell my car now, as I Will never be able to drive again. 

As you say, it's a small price to pay. 

Regards

Glenn .